April 8, 2014 at 10:07 pm #81371lainyParticipant
Dear Rain, someone needs to tell that old CC it is not going in the right direction. I just want to wish your Dad the best with his new Chemo and I just have a sneaking feeling you will hear from our Folfox users with some advice. I always feel as long as there is another treatment that is good news. Be strong!April 8, 2014 at 9:10 pm #81370rainMember
thanks for your responses. I feel like you have all become “old” friends.
Unfortunately as feared he has disease progression as a liver lesion has grown… 8mm in 6 weeks. Seems like alot to me.
However I have to give him credit he has already discussed with the Oncologist starting FOLFOX on Monday. Anyone have any experience with this regimen?
I know it was hard on him however we had gotten used to GEM/cisplatin and Panitumuab and also the wonderful cinical trial nurse….. I hope our experience with FOLFOX is even better but am of course worried…
RainApril 7, 2014 at 8:18 am #81369iliasMember
sorry to hear about dad’s markers. Hopefully the scans come his way with a better outcome.
I will pray for your family.
LouApril 7, 2014 at 5:41 am #81368gavinModerator
Hope that your dad gets some good news from the upcoming scan and loads of positive thoughts are heading his way from here. That’s great that the family are joining him in Australia and I am sure he will enjoy that so much. Please let us know how everything goes and what is said.
My best wishes to you and your dad,
GavinApril 6, 2014 at 10:23 pm #81367RandiParticipant
My thoughts are with you as you wait for your father’s scan results. Hopefully I will see you post in the good news section.April 6, 2014 at 7:49 pm #81366lainyParticipant
Hello Rain, it is so good to see you again. Prayers being sent for a good news scan for your Dad. Please let us know what the Scans show and hope your worry is for nothing! Be strong and take care.April 6, 2014 at 7:25 pm #9774rainMember
Hi forum friends,
I have not posted for a long time…… If I have to be honest i think i needed a break for my mental state. However I have checked this site regularly to see how everyone is doing.
This disease is a difficult course for the person however also for the family. You have good news some days and then not so good news the next.
My dad had a two month break from chemotherapy …..then he re started however his tumor markers are going up so am wondering it isn’t working anymore. We get his CT scan results tomorrow …… Please pray with me.
Am pleased his family is joining him in Australia next week for morale support.
All my best the the wonderful people on this board. If anyone wishes to try panitunumab gem and cis, at least for my dad it kept him stable for close to a year and I guess that is good….. Naturally I was hoping for more that this however ……
I just hope that the rapidly increasing tumor markers are something else….
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