Hi! – new member
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Tina,
I am sorry to hear about your mother. I lost my dad to CC last December so I know how you are feeling. From what you have said to us, it sounds like you and your sisters did everything that you possibly could for your mum and I know how much that would have meant to her.
You are right in that this cancer shows up far too late for some and that was also the case for my dad, his CC was deemed inoperable when it was diagnosed. I am sorry that you have had to join us all but glad that you are here. We can all help and know what you are going through.
Best wishes,
Gavin
Tina,
I am sorry your Mother is no longer with you. As a mom close to your mom’s age (61) with cc, I thank you for your words about hope and your caring about others. Your Mom would be proud.
Kathy
Dear Tina, we are so sorry for the loss of your Mother. My belief is that Morther’s never really leave their children and in time you will know that sheis all around you and your Sister. You are both wonderful daughters and you all handled this nightmare with greace and dignity. Our prayers go out to you and your family.
Tina…I am so sorry to hear of the loss of your Mom and appreciate your kindness in passing on encouragement to others. Your Mom had the support of two incredible daughters. She must have been so very proud of you. I agree with you that hope should never be taken away, as that is what drives us in the quest of overcoming adversity and in this case the disease of Cholangiocarcinoma. I am glad that you have found us and please, continue to share with us. We are in this together.
I wish for your heart to heal…..one day at a time.
Hugs
MarionMy mother was diagnosed with CC at the end of May 2010 at the age of 64 -her cancer was stage 4 and had metastasized throughout her liver. Her cancer was inoperable and treatment was offered to ‘extend life’. She was treated with Gemcitabine and Cisplatin but could only get through 1 1/2 rounds. She passed away on Sept 7 2010 after a series of complications. She was by far the strongest person I’ve ever known – her tolerance for pain did her a disservice in this case as it took a lot for her to go to ER. My sisters and I were relentless and dove ourselves into every piece of information out there – together with our mother we fought as hard and long as possible.
I’ve joined this group/website because I think it’s important that we exchange our experiences and knowledge about CC. Although a rare cancer, it is very lethal and unfortunately shows up in later stages. No family should ever have to experience the horrers of CC, however I strongly believe that with enough research and resources we can change it’s prognosis.
I know that the only medicine that truly helped my mother was hope; doctors need to realize that it is sometimes the only thing a patient has left and it truly can do wonders. So to anyone going through this journey, do not forget that each individual and their cancer is different and can react differently to treatment. Medicine is an art not a science. I wish everyone affected by CC the best and don’t give up!
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