Hilar cholangiocarcinoma

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  • #98537
    bglass
    Moderator

    Hi Nymisha,

    Welcome to our community.  Thank you for posting your mother’s story.  I am sorry to hear she is now confronting a stage IV diagnosis, and hope that her chemotherapy is successful in controlling the cancer.

    A healthy diet is helpful in maintaining well-being for cancer patients.  There is a lot of incorrect information on the web, however, about what cancer patients should or should not be eating.  It is important to only consider information from reliable sources such as the major cancer organizations (e.g., American Cancer Society) or major cancer hospitals.  Here are a few sites:

    https://www.cancer.org/treatment/survivorship-during-and-after-treatment/staying-active/nutrition/nutrition-during-treatment.html

    https://www.macmillan.org.uk/information-and-support/coping/maintaining-a-healthy-lifestyle/healthy-eating/commonly-asked-questions-about-diet.html#324133

    https://www.cancer.gov/about-cancer/treatment/side-effects/appetite-loss/nutrition-pdq#_667

    If you or your mother are considering dietary changes or supplements, please be sure to first run them by her doctor to ensure they do not interfere in any way with her chemotherapy or diabetes control.  From my own experience reading patient stories, I would add that sometimes it can be challenging for cancer patients to maintain their appetites and body weights, and it does not help matters if there is pressure that they only eat unappealing foods thought to be “good” for cancer patients.  A balanced, healthful, and tasty diet should be the objective.

    If the chemo treatment is causing nausea, the doctor should be able to prescribe medication to help.  If one does not work, another can be tried.

    I hope you and your mother have found the many resources available on the Cholangiocarcinoma Foundation website.  Please send any questions our way.

    Regards, Mary

     

    #98532
    Nymisha K
    Participant

    my mom has been diagnosed with hilar cholangiocarcinoma and had her surgery first. After two months of surgery, radiation therapy was planned but the doctors found fluid in her lungs (pleural effusion). The more fluid is removed, the more is getting accumulated and the doctors said the cancer has spread to lungs too. So now in stage 4. Her chemotherapy started last week. She has diabetes and that’s making it difficult for her to take fruits etc. to cope up with the chemo side-effects. Have been reading articles online that consuming carbohydrates, starch etc helps the cancer cells to grow. Is that true? Any experiences if shared would be of great help.

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