Hi,Rhike (Rachel) ou can introduce yourself here.

Discussion Board Forums Introductions! Hi,Rhike (Rachel) ou can introduce yourself here.

Viewing 15 posts - 1 through 15 (of 29 total)
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  • #57212
    Randi
    Spectator

    Rachel,

    I am so sorry for the loss of your beloved son. It takes a special person to continue to think of others when going through such personal pain. Stay strong and may the happy memories of your son bring you solace during this difficult time.

    -Randi-

    #57211
    pamela
    Spectator

    Dear Rachel,

    I am very sorry to hear of your son’s passing. He put up such a brave fight. I am sure he is watching over you in heaven. Although I know you must miss him more than anything, take comfort in knowing he is at peace. My prayers are with you.

    Love, -Pam

    #57210
    pam
    Spectator

    I am so sorry you lost your son. He was a brave soul and loved you very much. My thoughts and prayers are with you during this difficult time.

    #57209
    snoopy1
    Member

    Rachel,

    Please accept my sincerest condolences on the loss of your son.

    Terri

    #57208
    candrews
    Spectator

    I am so sorry for the loss of your son.

    Cindy

    #57207
    marions
    Moderator

    Rachael…My condolence note, on behalf of The Cholangiocarcinoma Foundation hopefully has been received by you.

    With this note I would like to assist you in posting in The Grievance portion of our site.

    Go to top of page,
    Forum Home (sometimes you may need to click it twice)
    Scroll all the way down to
    In Remembrance (click on it)
    Place curser on: Post New Topic
    You will need to enter: Topic Subject
    And then post the message in the block below

    Please, do not hesitate to ask for additional help if so needed.

    Hugs and love,
    Marion

    #57206
    lisacraine
    Spectator

    Rachael
    My heart aches for you. I pray that you find comfort in Gods love and promise. I will pray for you daily. I am so sorry for your loss.
    Lisa

    #57205
    lainy
    Spectator

    Paula, you may do anything with the poems you like and I would be honored. For Teddy’s Memorial I had written 2 poems and passed them out with his Saints Prayer Card and a short BIO of him along with CC brochures as people came in to the Church.

    #57204

    Lainy, I love that poem, and it is so true. Is it ok for me to read it at my dad’s memorial service, as I know it will give great comfort and hope to so many? Thanks, Paula

    #57203
    pcl1029
    Member

    Hi,
    I am so sorry for the loss of your child. It is very difficult for the parent to watch her child goes before them. God took him so he will be in a better place than suffering down here;
    Sincerely,I thank you for still have the kindness and gentleness to pray for a cure for patients like me in this extraordinary circumstance. Take good care of yourself and may the Love and Grace of God be always be with you no matter where your are.
    God bless.

    #57202
    lainy
    Spectator

    Dearest Rachel, I am so very sorry as to loose a child has to be the most devasating thing that can happen in one’s life. But, as you say your son is now at Peace and you carry on as that is what he would want you to do.

    Letter from Heaven by Ruth Ann Mahaffey

    To my dearest family some things I’d like to say
    But first of all to let you know that I arrived okay,
    I’m writing this from Heaven. Here I shall dwell with God above
    Here, there’s no more tears of sadness. Here is just eternal love.
    Please do not be unhappy because I’m out of sight
    Remember that I am with you every morning, noon and night.
    That day I had to leave you when my life on earth was through
    God picked me up and hugged me and He said “I welcome you,
    It’s good to have you back again,
    you were missed while you were gone,
    As for your dearest family, they’ll be here later on.
    God gave me a list of things that he wished for me to do
    And foremost on the list was to watch and care for you
    And when you lie in bed at night, the days chores put to flight
    God and I are closest to you . . in the middle of the night.
    When you think of my life on earth and all those loving years
    Because you are only human, they are bound to bring you tears
    But do not be afraid to cry, it does relieve the pain
    Remember there would be no flowers, unless there was some rain.
    One thing is for certain though my life on earth is o’er
    I’m closer to you now than I ever was before.
    There are many rocky roads ahead of you and many hills to climb
    Together we can do it by taking one day at a time.
    When you’re walking down the street and you’ve got me on your mind
    I’m walking in your footsteps, only half a step behind
    And when it’s time for you to go . . from that body to be free
    Remember you’re not going . . you’re just coming here to me.

    #57201
    rhike
    Member

    To all:

    My one and child 45 year old single son died this morning after only 4 months of having this disease. He was very brave and courageous and lasted seven days on hospice. I miss him so much but I have faith that GOD took him as he suffered enough. Lets all pray that this cancer will have a cure someday or a cancer fighting drug that could have saved my son’s life. Thanks to all for your messages. I would like to put this message on the berevement page but don’t know how. Can someone help me post it there.

    Rachel

    #57186
    lainy
    Spectator

    Dearest Rachel, words cannot begin to express the pain I know you are going through. I went through the same thing with my husband December of 2010. PLEASE do not look back, there is nothing you could have done better than to be by his side.
    I beg you to just be by his side now, hold his hand, talk to him and tell him how much you love him. If you can, give him the permission to leave, to go to his peace, he needs to hear that from you and you need to say it to release him and honestly it WILL give you a little peace. We are here for you in words, thoughts and prayers. I know you are in absolute agony but please don’t make that the last thing he takes with him to his Peace because that will be what you will always remember. What ever time there is make it a loving and peaceful time, it will help you both. Bless you all!

    #57187
    marions
    Moderator

    Dearest Rachel….my heart is heavy for you. Losing a child goes against nature because; us parents are not supposed to outlive our children. For some unknown reason your dear son has a cancer, little understood and rarely detected at disease onset.
    The most important thing is to keep your son pain free. As the disease progresses often times the pain also increases. In order to keep your son comfortable hospice has to increase the medication and unfortunately this step up of drugs makes your son very sleepy. He may not be able to open his eyes, but he is able to hear you and he is able to feel your touch.
    You might want to hold him, stroke him, whisper to him and let him know that you are here for him.
    Take him in, dear Rachael. These precious moments are not granted to all. We are privileged to have this special time, never to return, but etched deeply in our hearts forever.
    May the love you have for you son continue to guide you and give you the strength needed forever.
    Love and hugs,
    Marion

    #57185
    rhike
    Member

    To All:

    My son who is 45 years old has only a few days to live. He has CC since Novemer and I wished that I had taken hin to a Cancer center in NYC.I believed in the local doctor and the oncologize who gave Patrick 6 treatments of gemzar. He was so sick that he lost 50lbs on this chemo treatment. My son was so weak that I didn’t get a second openion for a resection of the tumor as I didn’t know where it is. I hate the gasto doctors and the oncologist doctors who did not informed me to go to a cancer center where my son could have had chemical trials, I have a lot of momey that has got to keep this disease broght to attention in this country.So my son stop taken the chemo because it was making him too sick and weak to go to another second opinion and I got no help from the oncolotist from the beginning that this was a diseae that was more than she coul handle. Four months of suffering for my son and for John and I as his parents. People who come out with this disease must be warned that GENZAR AND CISPLITIN DO not work for this disease. I should have let my son enjoyed his 2 months on quality life he would have had and would be dead by now. I want to write in the local papers what terrible care he got at Samairtian Hospital in Troy, NY. I left my son on Monday night in such terible pain as the 5 liters of water that was in his chest was drained and was having the hicups for 7 hours without relief or meds.He stomach looked liked he had a baketball in him. Tuesday morning he was on hospice. Lovely lopspice told me before I walked in the room to see my son that he would propably never be able to talk to me again. Something happen and they put him on continous drip of dillotin, starting at 1.5 yesterday which is up to3 mg. per hour.He has has no food or water in three days. He is just being drug to death by the drugs are going in his body like herione and this is the comfort of care. My son has sleep for 48 hours and was given 4mg of dilation tonight every hour. I know they just want to drug him to death!! My son is out of his mind with these drugs, no food, or water. He won’t open his and doesn’t know me. They are treateing him like he is 80 years old. I wanted to share this message for people who think that hospice is great for this disease but its not and do not use any chemo. My son’s stomach has distended so much that he has a basketball and fluid is coming in aagain.
    any ADVICE FOR ME TO DO. i GUESS THAT i MUST ACCEPT HIS DEATH, BUT WISH THAT i GOT THE RESULTS FROM A cANCER hOSPITALdO YOU THINK HE
    TOOATE TO SEND RECORDS TO dR. fONG aT sLOANE mEMERIAL.

    w.

    he

Viewing 15 posts - 1 through 15 (of 29 total)
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