home for the hollidays I pray
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thet said its cholangio and I have put off treatment for several reasons right know,go back monday 17 they say have to have teeth done first,then I know I wont eat as much as do now,let alone chemo in cold weather
they did biopsies but have said it might be another,at least new onc and surgeon did not onc i see monday,but i will ask again,how come i dont get messages in my email guys from replies thanks Eric
Have they ever done biopsies to determine if it is cholangiocarcinoma or a different type like colon? Really hoping for a positive doctor and a sensible plan to be put in place for you.
Kategemsar and cisplaten was 1 option,mfolfox 6 azd2171 I was wondering if it might be another type colon cancer that has spread fast,the hip bone lower vertibrate,stricture on colon and some spots on abdomin,I am already kind of weak but managing.no apointments until monday with might be old oncologist,this guy didnt just walk in the door and say your full and this is what to do,the clinic doctor went over all scan reports we had,has patholigy reports and discs of all films I see him in a week next wen. night everyone think possitive as possible and enjoy your evening. I cant sleep your friend Eric
I had second opinion,def think I need chemo this doctor explained things much more detail. now to decide what type I want I will post under general discution catagory thanks for any help recieved and going to need alot more being mostly by myself. thanks Eric and so sorry to here about Devoncat
Happy holidays to you too Mr. J. I hope this New Year finds you in good spirits & good health. Congrats on the upcoming birthday. I’ll be turning 46 on 1/29. Here’s to the January b-days. Blow out those candles & make a wish…and may all your wishes come true!! Keep us posted on the follow-ups & scan. Best wishes.
Kim
happy hollidays pet scan truck thursday next week follow ups I hope and birthday I know jan 3 47 ty everyone goodnight
Great to hear that things are moving right along. I agree, the tests should also be forwarded. My doctor won’t even read reports. He wants to see the actually films at all times. Maybe they can make arrangements to have that done. You really have to be persistent with these facilities. Well at least the ball is rolling. I will be anxiously awaiting your news. Keep the chin up my friend. Once again, have a wonderful holiday Mr. J.
Kim
Thanks Kim and others.I have already put this plan in place I follow up with gi that put osty bag on, another scan,and I also made apointment for cleveland clinic oncologist for consultation and to have pathology reports faxed, I wish they would fax or send them the tests also not just reports. but its a start Happy Hollidays and Amen
Sounds like a great game plan Mr. J. I agree that you need to be closer to people, physicians, etc. It is true, even though we walk around with this horrid disease, others still feel compelled to complain about their issues, some often quite trivial. However, it is truly a gift to be able to listen & help others. It also helps to keep your mind off of your own problems. Those who are too self-consumed rarely have time to even notice others who are in need, but that’s why there are givers & takers in the world. We can’t all be the same…life would be too boring if that were the case So hats off to the givers! I hope you start crossing paths with more givers than takers. Good luck with relocating hospitals. I’ll be checking in on you. Wishing you a very Merry Christmas & a New Year filled with joy!
thank you all and I will keep possitive and hope this has been slow growing and gives me time to heal some what before I make a decision I am also thinking of transfering to a more local hospital at least consultation, that would help tremendously not being so far away from people,and try not to complain as much,most the time the illnesses changes to there health issues that they have and I listen. Maybe sometimes I just need to be a better listener and just forget my issue at the time. Have a Merrry Christmas
Dear Mr J – People really don’t know how to meet your needs and they get so caught up in their lives. They probably do care but don’t want to intrude. I agree with Lainy – invite a few over for a limited time and share your thoughts with them. Let them know what you feel up to. About diet – of course eating what you can tolerate is good, try to get enough protein, even if it is through protein drinks. Costco sells a good one in chocolate or vanilla. Post often, there are a lot of good suggestions on this site. Blessings, Susan
Dear Mr. J. I am sorry about your news but new things are always around the corner. Attitude! We must have Attitude. And anyway you need that little fight song as Teddy has been way too busy to be receiving new people up there with him right now. I have an idea about the friends. It’s that time of year and if you are able you could invite a couple over for an hour or so for a little cup of Christmas cheer. Perhaps they are afraid to intrude on you and a little invite would renew those friendships. Good luck to you.
So sorry to hear about your loss of “friends” Mr. J. Some people don’t know how to handle illness, so they run. I have been extremely fortunate in that regard. I have so many people who have stepped up to the plate & have really gotten me thru this. Sometimes you have to open your heart in order for others to come in. Maybe that’s why I’ve been so blessed…that’s a door I always leave open. Please know that you have many friends on here & I don’t think any one of us would leave you out in the cold. No one truly knows what symptoms you will experience next. This disease has a mind of its own. All you can do is keep as mentally & physically strong as you can. You’d be surprised what the mind can do. I will pray that your strength remains high & that things start moving in a positive way for you. Just follow your body & don’t let anyone make you do anything that you think you can’t handle drug wise. If the medications make you too sick or weak, then take a break from them. In the meantime, we are all here for you. If I can help you in any way, please don’t hesitate to call upon me. Even if you need help finding home care nurses, etc. I think it would be a good idea to have a nurse check in on you periodically. Hopefully your insurance will allow it. If not, let me know. I’ll help you fight that too. Please take care of yourself & don’t hesitate to ask for anything. We all must stick together in order to beat that nasty demon. Don’t get down & don’t lose hope. You’re not alone. Keep us posted Mr. J.
Kim
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