Hospice coming to our home
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Amy,
Sending you warm thoughts and cyber hugs. I agree with the others that the drs. and nurses need to give you some answers and that making your mom comfortable is a top priority.We have seen several times on this board that confusion is often the result of high ammonia levels. You might want to check that out.
Kris
Dear Amy
yes it is good to get some straight talking.I think your mom might be gravely ill,Amy and try to rally all your supports and tell your mom everything you need to.If she rallies a little as sometimes people do well thats good but I think prepare for the worst and see how it goes. kindest regards JanetDear Amy,
I too am sorry for what you and your family are going through. I have to agree. You deserve some answers & insight into what is happening & what to expect. I feel I did not get that either and wish I had been told more & known what was happening and what to expect. It all just went so fast. I am hoping that you can get some answers soon. As Lainy mentioned, I think for your Mom the most important thing right now is her comfort & keeping here as pain free as possible. I will keep you all in my thoughts & prayers.
Love & Hugs,
DarlaDear Amy…..I am so sorry to hear about your Mom. I think that it is time for you to receive some straight answers. If the hospice nurse and the oncologist are not surprised about your Mom’s jaundice then they should share their thoughts with you. Amy, will your husband, or another family member be with you when speaking to the physician?
I am sending all my love your way,
MarionDearest Amy, I too am so sorry you are having to travel this road. This is a monstrous ferocious beast and we just don’t know enough about it. The important thing is to get your mom comfortable. Perhaps her confusion is from the jaundice. Did they not suggest she go in to the hospital now? What I don’t understand is if they all know she is jaundiced why are they not putting a stint in and if she already has one maybe it moved? I am so hoping you will know more Tuesday and that it all settles down for you.
Dear Amy, I am truly sorry for what you and your Mom are going through. You will definitely be in my prayers.
Tess
Well, here I am again a few days later, but wow have we been through some serious changes. I have been so reluctant to type this hoping that each day would get better, but things aren’t gettting better. Mom has gone down hill so quickly. She was released from the hospital on Saturday, August 30th and she was better for a few days. Earlier this week she was doing much better. The last few days have been awful. She is turning yellow. The nurse came today and had to insert a catheter. Mom had not urinated since Friday. How do these things progress so quickly? I don’t even know what it is that is progressing! The last MRI early in August showed that things in the abdomen were stable, the only new thing it showed was the tumor on the spine. Something is obviously going on though. The hospice nurse and the oncologist aren’t surprised by her jaundice. She has an apt with her oncologist on Tuesday, but I am not sure that she is going to be able to go. She is so weak and confused. It absolutely breaks my heart to typs this. I am so confused about what is really going on.
Please pray for us.
AmyAmy, I am so glad that you now have this option. It will relieve so much for you and your mother physically and mentally. Good luckk with it and please keep us posted.
Amy….It will be much better for your Mom to be in her own surroundings. You have made a wise decision, in my mind. Hospice workers will be able to help you to make your Mom comfortable.
All my love
MarionHi everyone,
As many of you know Mom is in the hospital with quite a few things going on. The drs discussed with her that they think that hosice coming to our home would be a good idea. The social worker from hospice and another nurse have come in to talk to us today. When her dr mentioned hospice to us a month or so ago I wasn’t crazy about the idea because when I hear the word hospice it made me think that death was coming soon. Talking to the hospice people has helped me realize that hospice is there to help your quality of life and they have many people “graduate” from hospice and not need their services anymore. I can see that we need the extra help coming in. I am certainly not a nurse, and don’t know all of the symptoms to watch for. I will be thankful to have someone come in to help us keep her comfortable. I am going into this knowing that we need that help and hoping that mom will also “graduate” from hospice in a while and be back on her feet and well again.
Amy
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