Dear Shel, have you sought a second opinion. I know that no one really knows anybodies time limit but I personally feel if he is mentally strong enough and wants to know that he has a right to a good guesstimate. That is my own personal opinion.
My Teddy’s tummy was also always rounded and he would like pat it but he didn’t have pain. If not a second opinion perhaps you could ask the ONC about a break. Of course you have a hard time believing, it IS a bad nightmare. Be strong!