How to Die in Oregon (death with dignity)

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  • #70944
    dmj4ctj
    Member

    I watched this movie with great interest, as we just went through the process with my husband. I can tell you that if it were available in PA (we moved from Columbia last October), he would have chosen to end his life earlier than it did naturally. Liver failure is a tough process, but I will say, that in the last stage (last week or so), pain control was not an issue. It was the encephalopathy that was most disturbing. I really hope that he was as oblivious to what was happening to him as he seemed to be.
    The sweet lady in the movie that had liver cancer chose to end her life at about the point that Chris was about 6 weeks before his death. She seemed to be very short of breath, probably due to the ascites. She should have had a drain so that she could have been more comfortable. Chris had one for about 2.5 months and it made a world of difference. Anyway, although his last 6 weeks were pretty hard, I can’t say I’m sorry to have had him here for that time. Taking care of him was very rewarding to me although heartbreaking at the same time.
    Having said all that, I hope that the option is available to me when my time approaches. I would find it very comforting to know I had some control over my life.

    #70943
    lainy
    Spectator

    I so agree Holly. Teddy was able to have the time to leave, his way. Every thing was in order. He had even made up his precious packets for all the kids and Grandkids. He had a ton of pins and stuff from the Shrine beside golf equipment and everytime one of the kids came over things got dispersed. He had a Christmas Village that was on a long table and it had grown from 4 feet to 5 X 8 with layers. That went to his daughter. She saw to it that the kids got their favorite pieces. We always laughed. After we got the final prognosis we went to the lake in Milwaukee and one of his goals was to bring packets for the Milwaukee bunch, his and mine. So he went into a back bedroom and our son-in -law led eveyone one by one for a short visit. All of a sudden the son-in=law starts laughing and says, “Wow, I feel like everyone was paying their respects to the Godfather” and we all cracked up as he was not far off base with that one. Then after his Memorial we had a dessert table and for dinner 28 of just family went to Dinner. We were getting ready and his 30 yr old Grandaughter said, I know, lets all wear something of Grandpa’s to dinner. SO all converged in our bedroom and we all went to dinner each of us wearing an item of Teddys. It was so neat and just what he would expect from us! What I am trying to say is we really all did it his way! Yes, Teddy, attitude is everything you left us missing you but happy. I am sorry didn’t realize I was reminising so long.

    #70942
    holly22a
    Member

    I am so in favor of death with dignity. I want to go with forethought and with decision, with a choice born of my will and at a time of my choosing. Wish it were available in DC.

    #70941
    gavin
    Moderator

    Interesting topic and great to hear everyone’s points of view on this. Saw this piece on the news today and thought about this discussion and thought I’d post the link here –

    http://www.bbc.co.uk/news/uk-22191059

    In Scotland, one of the MSP’s in the Scottish Parliament is attempting to bring a Bill on right to die. The MSP, Margo MacDonald has Parkinsons and has been very vocal on this subject for a few years.

    http://en.wikipedia.org/wiki/Margo_MacDonald

    http://www.bbc.co.uk/news/uk-scotland-scotland-politics-19646868

    THis is the Bill that she tried to bring forward in 2012 and I think she will be bringing a new Bill forward in 2013.

    http://www.scottish.parliament.uk/S4_MembersBills/Final_version_as_lodged.pdf

    Just thought I’d post these in case anyone is interested.

    Gavin

    #70940
    lainy
    Spectator

    Thanks, Susie. Somewhere it feels like I have seen it if not new. If new than I didn’t.

    #70939
    wallsm1
    Spectator

    No, it’s not on you tube. Per the movies website here are the options:

    See the film:

    Watch on HBO

    Buy the DVD

    Rent or buy on iTunes

    Rent on Netflix

    #70938
    lainy
    Spectator

    Susie how do we get to see it? On U Tube?

    #70937
    wallsm1
    Spectator

    Thanks for responding. It is an interesting topic and a topic I wish I didn’t have to think about at 33, that’s for sure!

    Has anyone seen the documentary? I’m thinking of watching it since it involves a CC patient, but I know it will be terribly sad and difficult.

    Take care,

    Susie

    #70936
    lainy
    Spectator

    Percy, this is fabulous news and the hope we are waiting for. Perhaps we could think of a slogan using for example Cure Cholangio Carcinoma …Courage to Continue 5 more years. Just thinking of the top of my head. Its always a mess when I start thinking!

    #70935
    pcl1029
    Member

    Hi, everyone,
    My answer to this topic is, if you and your caregiver can wait for 5-7 more years and you(the patient him/herself) wants to fight it out and will endure the side effects that the treatments dish out for you; then please keep up with the current knowledge to decide when to give in or give up.

    The “5-7 years” time frame is given by Dr. Hahn who is a medical oncologist and runs the The Center For Cancer Genome Discovery Lab, one of the largest 24/7 genetic lab in the States, and is the Deputy Chief Scientific Officer at Dana-Farber Cancer Institute. He said his lab has discovered several new oncogenes as well as targets that will pave the way for new therapeutic approaches.The approaches ,the models and the tools that his lab had pioneered and developed have already become widely used worldwide to discover and validate molecularly targeted cancer therapies.
    Dr. Hahn indicated that 5-7 years from now, the field of chemotherapy and targeted therapy will be a lot more precise and the treatment approach will be much more specific and less adverse drug reaction cause by the new crops of new drugs that will be on the markets soon.

    The same sentiment was also echoed by Peter Smith,PhD, the executive director of Drug Discovery Biology at H3 BioMedicine where he is responsible for overseeing drug discovery and translational medicine efforts of lead projects. He also works on identifying novel mechanisms of resistance that impacted clinical trial design and involved in additional drug discovery effort. His research efforts resulted in the design and initiation of several clinical trials . But he also suggested if all the labs can share each lab’s data as an open source with each other , and bring the patients , researchers, clinicians and scientists to work together then things will go much faster and sooner.

    In short, cooperation among different groups and patient education are the keys for speedy new drug development in targeted therapy and biomarker development.

    So, just try to give all of you an up- date development and/or difficulties on the frontier of new drug development and you decide what you will do with this information in the future if needed.

    The above information was from the CanLiv symposium that I had attended on April 5, 2013 in Washington DC.

    Personally,the above information somewhat changed my mind about what I had decided . And I will keep an open eye on both the new drug development and the new interest in immunology related treatment for cancer to make my final decision on my condition at that moment when the time is come.
    God bless.

    #70934
    clarem
    Spectator

    I was in favour of it before, but even more so now.

    There have been a couple of high profile cases in the last year or two in the UK calling for this to be legalised. We are getting there in healthcare within the UK but I sometimes feel we still have a long way to go in treating and caring for patients with dignity. The Liverpool Care Pathway causes great divide and controversy in it’s use so I guess DDA is still a long way off.

    #70933
    lainy
    Spectator

    Susie, a very interesting topic. I have and will always be in favor of DDA. I feel we have a right to determine our own destiny. BUT, only in the case of a catastrophic disease. I also think in a living will it could be stated at what point one would qualify. I think Oregon got it right. Let’s keep this cool, it’s a hot topic! Dignity, yes.

    #8240
    wallsm1
    Spectator

    I was wondering if anyone as ever seen this documentary? It features a patient with cholangiocarcinoma who chooses Death with Dignity, which is legal in Oregon. For those of you who may not of heard of it, here is the definition: Death with Dignity Act which allows terminally-ill Oregonians to end their lives through the voluntary self-administration of lethal medications, expressly prescribed by a physician for that purpose
    What are everyone’s thoughts on the subject? I know it is controversial and highly debated but I would still like to hear people’s opinions.

    Take care,

    Susie

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