How to Get Stronger
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Jebben, I have not heard of the others. Moved to Phoenix 15 years ago. No more COLD! I was thinking that if Dr. Henry could not see her he could recommend someone. Not that many doctors have even seen a CC patient. Sad, but true. Just a suggestion, read up as much a you cen on our site hear, it will tell quite a story.
Hi Lainy,
Thanks for the support! My family is from Appleton, WI, but I am actually a med student at MCW and Marquette grad, so I am in Milwaukee. We have been talking with Dr. Rilling at Froedtert, as well as Dr. Winslow and Dr. Cho at UW–have you had any experience with them? I will go ahead and contact Dr. Henry as well–thanks for the advice! I will also be sure to take a look around the nutrition page–very important that we are able to build up strength soon.
Thanks again!
Jebben, welcome too our wonderful family. We are from Milwaukee and originally everything happened so fast to Teddy when we were visiting. We used a Dr. Lyle Henry but not sure if he deals with liver (Teddy’s was in his bile duct valve) however he may be able to recommend someone. If you call him, tell him Teddy Sardina’s wife advised you to. He is at Columbia St. Marys. For Nutrition, we have a lot of posts for you. You can use our search engine at the top of the page and type in nutrition. I also think there is a Nutrition link on our home page. Best of luck and you are a wonderful Grandson!
Hi Bob,
We have consulted with doctors and interventional radiologists at both of our state (WI)’s major academic medical centers, and I got in touch with another doc at Mayo. Just emailed another doc at MD Anderson as well—let me know if anyone has had a good experience with any doc in particular.
Will be meeting with an interventional radiologist to talk about chemo/radioembolization this coming Thursday. We need to be really strong and demonstrate that she can handle the therapy, which is why it is so important that we find some really great nutritional options this week and work to build strength. Any suggestions on specific foods or nutritional options?
Thanks for your prayers and your support Bob!
Jebben,
You have our prayers. Have you considered getting another opinion? Others on this forum have and have been very glad they did. Keep being an advocate for your Grandma. God bless!bob
Hello,
I am new to the site–my grandma was diagnosed with ICC about a month ago. She has been hospitalized a couple of times, but has good liver function (good bilirubin levels), no jaundice and disease is entirely confined to the liver. Until 4 weeks ago, she was totally independent and the strongest person that I knew (she still is). Unfortunately, the doctors aren’t giving her much of a chance. Because of her hospitalization, she is pretty de-conditioned–can’t walk anymore, which is making our local doctors say that she is too weak for systemic chemo. We are hoping to do chemo or radioembolization, but need to build up her strength and appetite. Does anyone have any suggestions on how to build strength? Any good foods/ways to stimulate your appetite? We could really use all of your help and prayers! We are becoming frustrated that it has been almost a month and we still don’t have any treatment going…we are very concerned that we need to move much more quickly and aggressively, especially since liver function is still very good and everything looks promising on paper.
Thanks for your help,
John
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