How to stay positive in wake of it all?
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- This topic has 14 replies, 11 voices, and was last updated 11 years, 6 months ago by lainy.
November 13, 2011 at 11:35 pm #54049
Hey Grover, just watched Gallagher. What a riot! Not sure if I want to jump on my couch or to go check the crack in back!!!!!!!!!!November 13, 2011 at 11:09 pm #54048candrewsSpectator
I love Gallagher, Grover! And thanks for reminding all of us that we do not have an expiration date stamped on our foot! I have a couple of songs that always come to mind when I struggling with this horrible disease – Tom Petty “Won’t Back Down” and Ted Nugent “Stranglehold”!
CindyNovember 13, 2011 at 9:51 pm #54047marionsModerator
Grover…..pretty funny and uplifting. I like it.
All my best wishes,
MarionNovember 13, 2011 at 4:19 pm #54046groverMember
Nobody has an expiration date stamped on their foot. I’m still new here, but I have a Gallagher type of attitude. I’m going out in sssssssssyyyyyyyyyyyyyylllllllllllllllllllllllllleeeeeeeeeeee.
Hoping you know who Gallagher is, if not search him on you tube.
http://www.youtube.com/watch?v=oI8QxKTw59Q I did it for you. Have fun and enjoy the journey.
GroverNovember 13, 2011 at 3:59 pm #54045tlsinftlMember
Margaret – I love your list, I’m printing it out now and giving it to Ben (and me when I need it)!!
tomNovember 13, 2011 at 2:35 pm #54044
Dear Trevor, just wanted to pop in here and say good luck on the up comming scans and you are so right a good attitude is the best RX.November 13, 2011 at 2:22 pm #54043tnyjax34Member
Thank you everyone for your continued support. It is very easy to concede to negative thought in this long fight. I try to be a realist with a positive outlook.
I have scans again in two weeks, another big determinant in what is going to come next.
Jim, I am being treated at the Mayo Clinic in Jacksonville.
Keep the Fight!October 29, 2011 at 10:53 pm #54042jim-wildeMember
Trevor, try to set some possible short term goals. One that comes to mind, based on your onc’s thoughts, is to do all possible to become a resection candidate. Surgery, in the case of cc, is a very good thing indeed. It represents the only ‘cure’.
Keep us posted on your progress. Good luck with your treatment. BTW, where are you being treated?October 29, 2011 at 4:09 pm #54041jtoroMember
I wish I could be like you. I do have good days, but many bad days also. I still worry each day that my children will not survive without me. (16 &19)I take the blame as to why this happened. How could I leave my husband, mother, and family? All of these thoughts rush through my head. Then I’m fine for awhile and slip back down. It’s been 17 months and I still go through this. My down times are when I’m feeling ill or sick from chemo. I wish I could change my outlook. Counseling has helped and I have come a long way, but days are still tough for me.
JulieOctober 29, 2011 at 11:04 am #54040mariaSpectator
Trevor, Margaret says it all!
Life is NOW, not later. The future doesnOctober 29, 2011 at 4:05 am #54039pamelaSpectator
I don’t know what I would do without this site. Not many outside our little family here understand or have ever even heard of this cancer. That is why we all need to stick together. My daughter, age 25, has this cancer. At first, I had a hard time dealing with this website. It was too painful. I have since gotten used to it, and look forward to becoming more informed every day. Have you ever thought of blogging? I set up a caring bridge blog for my daughter and it really makes me feel better to write about what she goes through. Just a suggestion that helps me. Take care and I hope you find something that makes you feel better.
-PamOctober 29, 2011 at 2:51 am #54038mlepp0416Spectator
1) Take it one day at a time, one hour at a time, or one minute at a time
2) Be thankful for the things that you do have and for the things that you can still do, like the Tango! (I’m jealous, I can’t do the Tango!)
3) Enjoy each day, take joy in the sunshine on your face, the wind in your hair, the rain on your face, the smell of the air after a rain shower, the smell of freshly mowed grass, the smell of the flowers, the color of the leaves in the fall.
4) Spend time with your family and loved ones. Make memories together, take lots of pictures.
5) When you are feeling well, do something fun, implusive, silly.
6) When you are not feeling well, sleep, rest, curl up on the couch with a blanket and pillow and watch a good movie.
7) Don’t be afraid to ask for help when you need it. If help is offered, accept it graciously. Let family and friends be there for you, let them assist you, there is no shame in that.
Don’t be afraid to cry, to let your emotions come out. Stay positive, don’t take no for an answer, ask instead what else can we do or what else can we try.
9) Don’t be afraid to ask questions! Write down your questions and ask those questions of your doctors and make sure that they give you answers that you can understand.
10) Turn to your faith, put your trust in your self, your family, your oncologist and doctors. Stay true to yourself, stay positive. Don’t have a pity party.
I could go on with more suggestions as to how to make it through each day that God has chosen for you to be here on earth. Come back to this site often and you will gain knowledge and strength from all the other CC patients and their caregivers on this site. Welcome to our little family. We are all herre for the same reason…because either someone we love has CC and we are their caretakers, or because one has CC and wants the emotional support that we get from this site.
Go with God and KEEP KICKIN’ THAT cancer.
MargaretOctober 29, 2011 at 2:25 am #54037marionsModerator
Trevor….you said it: let’s keep up the fight. Already you have overcome some major obstacles and there is no reason to believe that you won’t continue the trend. A dear friend of mine fighting a different type of cancer, shared with me that although her mind likes to wonder, she tries very hard not to focus on the negative as it brings her down. Instead she has become one of the funniest people I know. Everyone has his/her own coping mechanism and it will be interesting to see how our other members on this site handle their emotions.
Stay strong. A tidal wave of support is heading your way.
All my best wishes,
MarionOctober 29, 2011 at 1:59 am #54036
Trevor, Trevor, Trevor…..If you can Tango, you can beat this!!!! It sounds like you are doing wonderful. I can only add that no one knows what is in the big picture, not really and when you feel that you need to know the picture’s ending, just tell yourself how lucky you have been up to now and that you are already one of our Miracles. You mention the Shirelles and I would like to say, “I Heard It Through The Grapevine”, that you are doing great and I’m getting, “Good Vibrations” about the outcome of your fate. So just stand strong and yell out loud to that CC, “Hit The Road Jack”.October 29, 2011 at 12:10 am #5818tnyjax34Member
I do not post on here that often though I frequent board looking for suggestions and advice on how to combat this horrible disease.
A quick update. Last month, I received good news with my scans. Fluid in my peritoneum had gone away and the tumors in my abdomen shrunk tremendously. I also showed two tumors below my small intestine. One stayed the same size and the other saw a good decrease in size.
My oncologist has mentioned if there is continued progress, then resection or intraperitoneal Chemo are possibilities.
I am approaching my 7th treatment on Oxali/Gemzar. Overall my weight and appetite have remained stable.
I am active, I take tango lessons once or twice a week and eat fairly healthy.
Now in lieu of all of this, I sometimes loose sight of the big picture. Like where is all of this going? I try to stay in the moment as much as possible. Though sometimes I think bad thoughts. Specifically when the doctor estimates the amount of time you have left.
Like the Shirelles sing, ‘there will be days like this mamma said.’
I have read a lot of stories on here of people defying the odds. And it is o empowering to hear that.
How does one stay positive? To not succumb to morbid thoughts?
Let’s keep the fight…
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