How to take this

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Viewing 6 posts - 1 through 6 (of 6 total)
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  • May 26, 2012 at 4:33 am #61297
    pamela
    Spectator

    Tiff,

    Lauren’s has always been .20 and last time it was .30 and she freaked out. That is about the lowest you can get!! You worry too much. The CA19-9 number is super terrific. Yay!!!! Take care.

    Love, -Pam

    May 26, 2012 at 4:05 am #61296
    tiff1496
    Member

    Lol ok kris. Mine was hanging around .50, but you know me. I worry about everything.

    May 26, 2012 at 3:59 am #61295
    kris00j
    Spectator

    Tiffany: The bilirubin is another way of knowing if the liver is tolerating chemo. I wouldn’t worry about it. Mine is usually around 0.8-1.
    And it can drop depending on what you eat, etc.
    Celebrate your wonderful CA-19-9 numbers and don’t sweat the bilirubin, okay??

    May 26, 2012 at 3:02 am #61294
    tiff1496
    Member

    Less than 1.0 is normal in the states. So, I’m still in normal range, but I don’t like to see it go up!

    May 26, 2012 at 2:20 am #61293
    nancy246
    Spectator

    Hi Tiff, Definately the dropping of the ca 19-9 is reason to celebrate! Not sure how your bilirubin numbers work in the states so not sure how high that reading is. Did you ask your doctor about it? As bilirubin goes up it indicates the liver is working harder to rid the body of toxins. Chemo can cause higher than normal bilirubin numbers, so may not be indicative of the disease. Hope this helps. Have a great weekend. Hugs. Nancy

    May 25, 2012 at 6:37 pm #6866
    tiff1496
    Member

    My CA 19-9 dropped 25 points in less than a month. It’s now at a 33!!

    But I’m starting to worry about my total bilirubin, it’s now at 0.70. It seems to be slowly getting higher. Do I need to worry about this?

    Is the dropping ca19-9 a reason to celebrate?

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