How will we know?

Discussion Board Forums General Discussion How will we know?

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  • #40734
    minnie305
    Spectator

    Thanks for that answer, Lainy, I hope more people reply to this question because I would like to know the same thing myself!

    #40733
    lainy
    Spectator

    Welcome, MELIL18, to our wonderful family. It is not a horrible question as on this board are many wonderful, caring, knowledable people who are here to answer any question. Unfortunately with CC there is no answer, rhyme or reason. Everyone seems to react so differently than the next one. Some who have been given weeks are here after years and others who were given a good prognosis are gone after months. This is why we just prefer to remain optimistically realistic.
    My husband went into Hospice (at home) August 10th and they expected it bo be by the first week in October, well guess what, he is still doing ok. Not great but fair.
    As for what to look for is also anyone’s guess. Some signs could be withdrawal, spends more time sleeping, eats less, becomes confused. Skin tone change.
    Please keep us posted and remember all questions are good questions.

    #3890
    melil18
    Spectator

    This is perhaps a horribly morbid question, but it’s the main one weighing on my family’s mind right now.

    My father was diagnosed with CC in April. It is wrapped around an artery in his liver and therefore inoperable. He had jaundice and was in pain which was what made him go to the hospital. He has been on chemo and the tumor has not grown or spread. For a long time he was very nauseous and had diarhea and lost a lot of weight. The doctors have tried a new med and the nausea and diarhea are gone and he has put some weight on. The only new development is swelling in his ankles which we wonder if that’s just from laying down so much these past few months.

    So here is my question. We know he is sick and he’s thinner. But he seems fine. He works on his car and goes fishing on his boat. It is so easy to forget that we may soon lose him and that he may not be able to dance with me at my wedding in 6 months. My question is, will we have some warning? I hate to make people recount their experiences of loss, but what are signs? If he is up and running around and the tumor has not grown, does this mean we have more time with him than we thought???

    We are just wondering how this disease works….

    I am so thankful for anyone willing to answer such a horrible question.

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