June 11, 2016 at 8:35 am #92353May 19, 2016 at 3:07 am #92352
Thank you all for your kind words. I am still in shock over all this . I guess I will never understand why this happened and I’m just trying to make sense of it all. Thank you againMay 18, 2016 at 5:21 pm #92351gavinModerator
I am so very sorry indeed to hear of the passing of your husband. Please accept my sincere condolences. I wish there was something that I could say right now that would help ease the pain that you feel. Please know that we are all here for you and will help if we can. I too can not add anything to what the others have said to you about the drugs you mention. My thoughts are with you and your family right now.
GavinMay 18, 2016 at 7:14 am #92350marionsModerator
Amy…..my heart breaks for you and your family. Diagnosis to passing came about awfully quick leaving you with a broken heart and sorrow for a life lost too early.. Please accept my most sincere condolences.
I too am not aware of linkage of the mentioned drugs to the disease of cholangiocarcinoma. There are several risk factors with possible linkage to this cancer, but none have been clinically proven to cause this cancer. The majority of cases develop due to unknown reasons, but I believe that with time this question of cause will be answered.
I wish for your heart to begin to heal…..one day at a time.
Hugs and love,
MarionMay 17, 2016 at 3:35 pm #92349middlesister1Moderator
I’m so sorry that you lost your husband to this disease. I’m sure you’re finding out that it is very rare, and although they are making progress in treatment, there are still too many who succumb rapidly. My thoughts are with you and your loved ones.
Take acre of yourself,
CatherineMay 17, 2016 at 3:21 am #92346lainyParticipant
Dearest Amy, I am so very sorry for the loss of your husband. It is bad enough getting the CC diagnosis let alone loosing a loved one so quickly. Please accept my heartfelt condolences. In time it is true that the grief subsides and the good memories take over.
Do not stand at my grave and weep;
I am not there. I do not sleep.
I am a thousand winds that blow.
I am the diamond glints on snow.
I am the sunlight on ripened grain.
I am the gentle autumn’s rain,
When you awaken in the morning’s hush,
I am the swift uplifting rush
Of quiet birds in circled flight.
I am the soft stars that shine at night.
Do not stand at my grave and cry;
I am not there. I did not die.
For everything beautiful that you see
will bring a memory of me.May 16, 2016 at 8:23 pm #92347debnorcalModerator
I am so very sorry for your loss. This disease struck your husband so hard an so fast, giving you very little time to process what was happening. I can’t even imagine how difficult losing your husband this way is for you. I hope that knowing your husband didn’t suffer much brings you some comfort. We are here to support you in any way we can.
In response to your question, I have never heard of these drugs being tied to risk factors for CC. Perhaps others can comment on this.
You have my deepest sympathy,
DebbieMay 16, 2016 at 5:05 pm #92348darlaParticipant
I am so sorry to hear of the loss of your husband to this disease. Way too young and also so quickly. I know how hard it is to even try to understand what and how this could happen, but am hoping that through your pain and confusion you can be consoled by knowing that at least he did not have to suffer for long. I know at this point it is hard to see any good in all of this, but just know that in time you will begin to heal and be able to take comfort in all the good memories you have of him. Keep him with you forever in your heart and those memories.
Unfortunately I don’t have any of the answers you are seeking, but want you to know that we care and are here to help and support you in any way that we can. I’m sure you will be hearing from others soon. We are a very kind, knowledgeable and supportive group.
DarlaMay 16, 2016 at 4:04 pm #12447
Hello my name is Amy and my husband was diagnosed with Cholangiocarcinoma last Thursday May 5. He had been in hospital for a week before the Dr figured out what is was. Only real symptom he had was horrible pain in chest and back. After many tests they discovered cancer was in bile ducts… But had already metastized to lymph nodes in abdomen and bone marrow. We were devestated he was only 46. He had one chemo treatment last Friday and had 2 good days on Monday his liver failed and he fell into coma and passed away Friday May 13. I am devestated I don’t understand how someone could go so quickly. He had rhumatoid arthritis which was diagnosed in 2010. He had taken methotrexate for awhile but had been off it for several years . He also was taking weekly injections of Humira. Does anyone know if either or both of these drugs are linked to that type cancer? I am at a loss… Thank you for any info you have.
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