Husband recently diagnosed with cc
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Thanks for the reply. He seems to be getting better but it looks like its cellulitis and the doctor put him on antibiotics and no chemo this week and now we wait to see how he is doing. Let me know if anyone else has had this problem . thanks, Nancy
Hi Nancy. My daughter, Lauren is also on Oxaliplatin. For a few days after receiving her infusion, her fingers lock up. So it might be from that chemo. Has he tried exercising since? Hers always goes away after a few days.
Hi everyone, as the the weeks unfold there never seems to be a dull moment. Robert had his third round of chem the other day and just as he was feeling a little better he tried to exersize with light weights. The next day he couldnt move his left hand and wrist and was in excruciating pain. Is there any correlation to tendinitus and chemo with oxciliplatin and gemzar? By the way, the hospital is trying to figure out a way to adjust our bill with the insurance company. I have also enlisted the help of the Patient resources foundation. They act as an advocate for patients. This is a really helpful foundation if you need help with insurance companies. Thanks, Nancy
Thanks for the input. I went to customer service at the hospital and then to pastoral services and between them they are dealing with the insurance company. I still have no idea who will ultimately figure it out but meanwhile we are getting outpatient treatment. Ill keep you posted….
13Carats, when we would have a problem with the Insurance Company, like for PETs, the ONC would intervene and somehow they would come through for us. Just a suggestion. Good luck!
13carats….I hear you. Given the rarity of occurrence of Cholangiocarcinoma, insurance companies have little data to fall back on. It seems that they design blanket rulings based on their own criteria (whatever that may be.) In this instance it appears that the insurance company wants defer a certain amount of cost to the hospital. I know very little this subject; hopefully someone out there is able to offer some information to us.
These are my thoughts:
Enlist the help of the prescribing physician. He/she will have plenty of experience with denial of coverage.
Ask the Hospital personnel about the rulings for Medicare patients in re: to treatments of this disease. This sets the tone most insurance companies follow.
Try not to become overly upset; these issues (generally) are worked out.Hugs,
MarionHi,
please check out the link below too:According http://chemoregimen.com/Biliary-Tract-Cancer-c-27-37.html
And According to clinical pharmacology web site: 2 regimens are being used .
1. Oxaliplatin 100mg/M2 IV on day 1 and 15 in combination with gemcitabine (1000mg/M2 IV on day 1,8, and 15),repeated every 28 days.
2. Oxaliplatin on day 2 in combination with gemcitabine at a fixed dose rate on day 1, repeat every 14 days.God bless.
Thanks Marion. This is such a difficult and tumultuos road. Today we were informed that our insurance will only pay a small portion of outpatient chemo therapy but will pay for in patient therapy and this is causing a big problem for the hospital. Have you ever heard of anything so crazy?
13carat…I believe that we have seen various administration doses and time administration with this therapy. Hopefully others will chime in and help you out.
Hugs,
MarionHello again, Roberts doctor called today and suggested he do gemzar and oxciliplatin in consecutive sameday administrations. Do you think there is a risk in toxicity? Why do they normally do this in two consecutive days every two weeks? Any input is greatly appreciated.
13carats: just wanted to chime in. You might be interested in reading the below:
http://clinicaltrials.gov/ct2/show/NCT00956930trial:http://clinicaltrials.gov/ct2/show/NCT00956930
and explanations of treatments:
http://com-radiology.sites.medinfo.ufl.edu/files/2010/03/April-10-2.pdfhttp://www.sirweb.org/news/newsPDF/facts/Liver_Cancer_fact_sheet.pdf
http://www.ncbi.nlm.nih.gov/pubmed/19552767
Hugs,
MarionHi again, thanks for answering my post.Your foundation is the one bright spot in my cc psyche. Robert is 62 years old and in great health except for this 10 cm tumor on his liver. He will be having a follow up cat scan next week to see what has changed in the last month. Thank you all for your information.
HI,
May I ask how old your husband?
May I ask why the interventional radiologist want to switch to radioembo rather than continue to have chemoablation? If the doctor just want to try radioembo to see whether is a better treatment or not ;and as you said the cancer is well contain and not gettting worse;than I will continue chemoablation and NOt to have radioembolization.
Under our experience forum of radiation treatment; there are a lot of info about radioembolization. please take a look too.
God bless.Thanks for your info. We went to see the radiation oncologist yesterday who gave me the impression that radioemboilization is as effective as chemo embolization or less so. This was perplexing and I wanted to ask you all of your experience with radioembolization. I was under the impression that using all three modes of therapy were the most effective. Any thoughts?
Hi,
that is Ok .
recovery is an individual thing.
but recovery to 137,000 before the next scheduled cycle is always a good sign.
some doctor use 100,000 as a cut off point ;others use 75,000 and 50,000 ;all based on the doctors experiences and their own judgement on each patient’s condition. and that is why need experience oncologists to make the call rather following the books.
God bless.
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