Husbands cc
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Theresa, I sent you an email. Hope it helps and if you have any questions e mail or call me, I try to be tenderly honest.
Dear Teresa,
I am sorry to hear about Dennis and that he is at this stage and I can relate to what you are feeling right now having the felt the same when my dad was at this stage. Like the others have said, there are things that can be done to help ensure that Dennis is kept as comfortable as possibe and I know that you will do everything that you can for him. And we will all help you as best we can, so please remember that we are here for you and know what you are going through right now.
Hugs,
Gavin
Thank you for you’re replies. I will call the onc office about care for him at home. I’ll make sure he gets the best of care. He’s so upset about this. Can’t blame him!! I don’t think he has much strength. He’s getting weaker. You all are so informative. Don’t know what I.would do without you all!!
Teresa
Topcare, I am so very sorry to read this about Dennis. The best you can do now is to see to it that Dennis stays comfortable. Teddy never swelled or slurred but when his eating slowed way down I just let him eat as he could. Like graze during the day instead of big meals. Have any of the Docs said anything to you about calling in Hospice? They can be called up to a year ahead of what ever may be. They will keep Dennis comfortable and it will release you to just spend the time together. Teddy called it our ‘honeymoon’. You will do best if you can stay very strong, tell him every day how much you love him, tell him how he is loved by everyone and above all tell him you will be OK. I so hope you get some better news from the other Cancer Center. We are here for you, you are NOT alone. Sometimes it even helps to write on here daily so that you can let your feelings out. I have written a post on getting to the end but prefer to e mail it if you would ever want to read it. Just let me know. My heart and prayers are going out to you.
topcat….palliative treatments are available for symptoms. Laxatives may help with the swelling and if necessary, the fluid may be tapped to allow for comfort. The slurry speech is it related to elevated ammonia levels. Don’t hesitate from calling the physician with any questions you may have. It is of utmost importance that Dennis receives the utmost of care. My heart is with you.
Please, keep us posted and I hope for others to chime in also and share their thoughts with us.
Hugs,
MarionHi,
I am sorry that nothing can be done for your husband even at Vandabilt university hospital which research of this cancer are part of their research interest . It has been I think almost 17 months since the DX of this cancer , right? I think the doctors have tried their best for your husband.
As his doctors told you,his illness indeed is progressing as indicated by swelling of the legs and feets,and slurring in speech, a sign that may be related to the increasing ammonia level. I hope at this point to consider ” quality vs quantity of life” may not be a bad idea. I hope I am wrong in this case but try your best to let him know how much you love and care about him as each day goes by.
God bless.Hi all…hope eveyone is well. We went to the onc thursday and we were told there was nothing else that could be done. This absolutely knocked us to our knees!!!! We have another cancer center looking at his case. Dennis has gotten weaker but able to get up to use the restroom. Hes not eating much, snacking here and there. His legs and feet are swelling and speech is slurring. This seems to be his illness progressing am I correct? The onc said that from the latest scan and checking him out that it is progressing. What should I expect next.? Im trying to get him to eat,shakes etc. to help him. You all are the ones I trust in this. Thank you and God bless!!
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