I might be getting a new liver…and SOON!

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  • May 10, 2013 at 4:10 am #71774
    marions
    Moderator

    Sure it is crazy, Tiff, for this to come about so soon after our mailing each other. Good to know that our Lisa is our contact person in case you don’t have the opportunity to keep us informed. My heart is with you and your family and the doctor performing the surgery and the person donating his liver and the family of the original donor, who is giving life to others. So much to be thankful for.
    Hugs,
    Marion

    May 10, 2013 at 4:04 am #71773
    lgpjennings
    Spectator

    I am so happy for you, Tiffany!! I am sending positive thoughts and prayers your way for a new liver. :)

    Lisa

    May 10, 2013 at 3:52 am #71772
    tiff1496
    Member

    God is working it out for me! I’m excited!
    I’m worried they will open me up and find more. What is everyone’s thoughts on this? I have had 2 clean PET scans

    May 10, 2013 at 3:48 am #71771
    lainy
    Spectator

    Tiff, this is CRAZY GOOD!

    May 10, 2013 at 3:42 am #71765
    tiff1496
    Member

    Right now I’m in Alabama. I have 3 people that own their jets and are willing to take me out there day or night. They are on call to me. There is also 3 flights to Huston, but that would all be in the timing of when they call me, if I use them (United I think).
    I might head out there around the holiday and wait.

    I also like the odds of this! Dr. Javle said if it was to develop that it could take 20-30 years. He also said there will be better treatments.

    I will try to keep yall updated! If not, Lisa is in the loop! So she can post for me!

    Marions- Isnt this all crazy! Just after our emails!

    May 10, 2013 at 2:46 am #71770
    marions
    Moderator

    Tiff….fantastic news. I like the odds. It mentions disease occurrence is only 2 out of more than 500 patients so far have developed symptoms after domino liver transplantation using an FAP liver. Tiff, will you be staying in Texas or are you traveling to another state?
    Hugs,
    Marion

    May 10, 2013 at 2:37 am #71769
    rain
    Member

    Wow Tiffany that is such great news. I have been praying for you and your young family. You are blessed to have Doctors that seem to be doing everything possible for you.
    All my thoughts

    May 10, 2013 at 2:26 am #71768
    lisacraine
    Spectator

    Tiff,
    Thanks for the info…..now I understand.
    Love ya
    Lisa

    May 9, 2013 at 9:46 pm #71767
    Randi
    Spectator

    This is such fabulous news! You must be excited and nervous at the same time. Congrats!

    May 9, 2013 at 8:08 pm #71766
    lainy
    Spectator

    OMG! OMG! Tiff what extraordinary, fantastick, awesome news! WOW. I, Me I am at a loss for words, really I am, this is so phenominal. You must be so excited. Prayers, are going to be heaped on you. I have tears of joy right now, this is unbelievable. Best of everything for you and your family!

    May 9, 2013 at 7:58 pm #8349
    tiff1496
    Member

    I’m going to be part of a donino liver transplant!

    The persons liver I will be getting is on the very top of the list, because of a heart problem.
    To read more about what is going on here…..
    http://www.ncbi.nlm.nih.gov/pubmed/18555132

    He does have FAP. I have talk to a few doctors….Dr.javle, Dr. Fung from the Cleveland clinic and all the doctors and surgeons at Methodist think its the best for me! I might not ever give me any problems, and if it does, it could take 30 years to develop. That’s a lot better odds than CC!
    It could be any day…or a few weeks. We just don’t know!

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