June 29, 2010 at 7:23 am #39349snezzieMember
I don’t know don’t know if this info will help…..
Look up about The Block Center. This Dr Block was the first MD to use the Chemo pump.
He is in Evanston, Illinois. I am goIng to see him on July 9th.
SnezzieJune 28, 2010 at 10:18 pm #39348lainyParticipant
Been there done that…Isisman. Teddy is not computer literate and so he prefers me to do everything (as usual) but that is OK with me as I delve deeper than he does. He accepts it all and in fact anyone who knows what he has been through will tell you he has a mind of steel with a fabulous outlook. He is very forgetful as well now, so I don’t mind finding out everything for myself then share it with him. When I have had enough I just go outside and putz around and the fresh hot desert air seems to help. You must take time for yourself. Went to lunch Saturday for 3 hours with a friend and totally lost track of time. I guarantee you that as much as we would never want to be a CC patient no one goes out to looko for the job of Care Taker either. Hang in and find some good outlets! P.S. We have a Girl’s Night Out once a month when 8 of us take turns in organizing something fun to do. I really look forward to that. Example: I was hostess in January and we had a Zumba lesson (dance exercize to Latin music and then I found a Hanava restaurant we went to).June 28, 2010 at 9:15 pm #39347lsismanParticipant
I would like to have endless ignorance is bliss dinners. I’m a caregiver for my husband. I’m more educated in this CC area than he. I tell him what I read from here, what I find out, what questions to ask, maybe he is choosing to remain in ignorance and it will just work its way out! Or he is accepting his path and just going with it, without going nuts over what you can do, could do, get more opinions, travel to new docs, etc etc, he may just take the path that is his, here now, at 51. I’m always looking for answers, reading, thinking, what if , what if, now I’m wondering if I’m the one going crazy, making myself crazy and he is just focused on recovery and whatever else comes. aaggghhh!June 26, 2010 at 1:14 am #39346lisaParticipant
I didn’t have any serious side effects with Xeloda except for acne and I got fat.June 25, 2010 at 1:44 pm #39345gavinModerator
Sorry to hear about your latest scan results. I hope that the Xeloda treatment goes well for you and that you find out a load of info on the chemo pump implant.
GavinJune 25, 2010 at 10:26 am #39344lalupesParticipant
Good Luck with the new treatment, Suzanne & here’s to many future congratulatory dinners.
Julia xJune 25, 2010 at 6:00 am #39343devoncatParticipant
Not the news we wanted to hear. I hope they figure out the platelets issue. Good luck restarting chemo and finding a new protocol for you. In my thoughts.
KrisJune 25, 2010 at 12:25 am #39342lisaParticipant
Suzanne, I am wishing you all the best. You just never know with this cancer. It affects each of us so differently it is like each of us has a different disease.June 24, 2010 at 11:40 pm #39341suzannegmMember
Results today. Would have loved to remain “ignorant” but it didn’t work out that way. The cancer is awake again after almost 3 months without chemo. Platelets are still in the toilet, my CA19-9 is rising, bilirubin is slowly creeping up. One tumor has grown and I have a couple of new spots. But one good thing is there are no mets outside my liver. Starting on Xeloda, and looking at a bone marrow biopsy to try and figure out this platelet issue. May be looking at a splenic embolization. Until my platelets are at least 100 I can’t even be considered for any clinical trials. Will also be researching a possible chemo pump implant. I need more info. Man, it just gets better and better (said with sarcasm).
Thanks for all the support, and I’m still glad I had my “ignorance” dinner. I highly recommend it, good food, great family, great friends, lots of laughs. This is what I live for.
Kris – SC rocks!June 24, 2010 at 10:53 am #39340devoncatParticipant
Best of luck today. I am crossing my fingers. You one of those patients whose rollercoaster ride has higher hills and deeper valleys than the rest of us. But somehow, you always beat the odds and come out on top. You never follow the rules or guidelines with cc so I am sure you wont this time either. Wishing you nothing but clear and clean scans to come. Let us know how it goes.
And isnt it great that both USC and Clemson are in the College World Series!
Go State of SC.
KrisJune 24, 2010 at 9:38 am #39339gavinModerator
Your ignorance is bliss dinner sounds like a great idea. And like Lainy and Marion, I am hoping for good news for you today and am kweeping everything crossed for you.
GavinJune 24, 2010 at 5:01 am #39338marionsModerator
Suzanne…it is always great to hear from you. I am with you re: the “bliss” dinners. In fact, this could start a new wave of “blissful” idea.
Good luck, fingers and toes crossed.
As always, best wishes are coming your way.
MarionJune 24, 2010 at 4:59 am #39337lainyParticipant
Suzanne, hoping and wishing for your dessert to be the best!June 24, 2010 at 4:53 am #3699suzannegmMember
Thursday I find out the results of my latest scans, so Wednesday night I had a “ignorance is bliss” dinner with my husband and one of my close friends.. It was great! I thought that since Thursday could bring crappy news I would have a good dinner since I might be a complete wreck after seeing the onc. Sure would be nice to have a plain ‘ole “bliss” dinner Thursday night. Wish me luck (gosh I hate this rollercoaster).
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