It has been quite some time since I posted on this amazing site, but I just wanted to let you know I am three and a half years post diagnosis. A year ago I completed six months gem/cys and had 60% shrinkage to the tumours. My latest scan in May has shown a 1mm growth and a cluster of new small tumours.
Having regular 3 monthly scans leaves me feeling like I am playing Russian roulette – every time I get a good scan result showing no or minor growth, the chamber is empty. But I know one day that chamber will not be empty and I will then have to face the consequences.
In the meantime, I carry on life with a giggle and a smile and am still experiencing new adventures and meeting wonderful people.
My strength is my attitude and I wish anyone else with this horrendous disease lots of attitude.