Inoperable tumor in the bile duct
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My own personal opinion is that we should do what our bodies allow us to do. CC takes so much of one’s strength to fight I would want to save my strength and not push. The doctor had told Teddy to take small walks. As he would feel he could increase his distance he could do that on his own. By all means if he is up to work he should. Of course if he dislikes what he does that could be another story. Patients all seem to adjust to what they feel they can do. Everyone reacts so different to CC there are no rights and wrongs. It’s a lot of hunt and peck as what works for one may not work for another. Perhaps a small walk here and there for starters.
Hello Charlene…a warm welcome from me also. As Sara mentioned in her interview at ASCO (hey, we were in Chicago) the community (each and everyone visiting this site) contributed to the success of the discussion board. Therefore, thanks for joining in.
Following the meeting with specialists in order to gather multidisiplinary opinions your Dad’s physician will be able to convey a clearer picture of how he feels you may want to proceed with the available treatments. As Lainy has mentioned you may want to make sure to retain copies of everything pertaining to your Dad’s disease. Patients are entitled to all medical records.
Hopefully, your Dad will be able to eat a bit more today. Although, diabetic there has to be something you can entice him with. I assume your Dad’s pain will subside and is related to the previous procedures.
Again, I am glad that you have found us and please, stay in touch. We care.
All my best wishes,
MarionOne more question for those of you out there reading this:
My dad has been on sick leave from work since his first ERCP in early June. Any thoughts on going back to work or just going on long term disability? Part of me thinks that work might take his mind off of things, as he is currently at home all day long with nothing to do but think about all of this. But another part of me knows how stressful work is for him and how much he dislikes going to work in general.
Also, I was thinking that maybe exercise would be good for him… Maybe getting up and walking around the track a few times in the morning… Might rejuvenate him and give him more energy.
How has CC affected your work life, if you are still working with CC? Does anybody recommend light to moderate exercise? I’m just concerned that it would add to his already sudden weight loss…
Thanks in advance for your input!
Charlene
You are a fast learner!!!!!!!!!
Saym I live inPhoenix but lived for 35 years in that suburb of Chicago called, Milwaukee! Teddy loved the Vanilla with a banana blended in.Thanks, Lainy.
Although this was my first post, I have been frequenting your site for a few weeks now. I just want to say thank you for making this website available, and to all the many people who have shared their experiences with all of us out there.
We continue to pray and thank you for your words of support!
On my way to the grocery store to pick up some Carnation Instant Breakfast now…
Dear Charlene, welcome to our wonderful family but sorry you had to join us.
First and foremost we are very strong believers in 2nd and 3rd and more opinions if needed. All you need do is gather all Dad’s records and send them to another place that may be more knowledgeable on treating CC like Mayo, Rochester MN. I don’t understand the remark by the Doctor that he has not had an opportunity to present your Dad’s case to the Board. Is he waiting for an invitation? (Sorry)
About eating….CC really throws off the digestive system let alone the upset that your dad is feeling now. If Dad is not feeling hungry try a substitute like Carnation Instant Breakfast. My husband loved them and I would blend them with a banana or fruit. One envelope takes the place of any meal. Small meals work best and comfort type foods.
Honestly once a diagnosis is made and a treatment begins you will all not feel so scared and the fright willl turn to fight. Stay strong and have an upbeat attitude as that is really the best RX. Please keep us posted.
P.S. Cyber Knife My husband had C.K. and it is a miracle. The tumor must be under 7 cm and there can be no metasis anywhere. Also it depends on the location of the tumor but it is truly awesome. You can google all about it. Remember that knowledge is powerful and the best tool in fighting CC.Hello everyone. My dad has been consulting with his PCP, a gastro specialist, and now an oncology surgeon for the past month. He presented with jaundice on May 19, 2011, and has had an ERCP, MRCP, and CT scan. The surgeon at University of Chicago has not yet had an opportunity to present my dad’s case to the tumor board, but is saying that this tumor is likely unresectable.
As you can imagine, we are devastated by this news, but I am trying to keep in high spirits so my dad does not get defeated by this disease.
As of right now, the surgeon is ordering another ERCP to get a biopsy to confirm that this is cancer, but everybody is treating it as CC. My dad is 59, with diabetes, but is otherwise quite strong. This morning he had abdominal pains and does not want to eat today, but I told him that he has to! Once they can confirm what type of tumor it is, they can put together some treatment options for him.
Right now, I’m wondering if anybody has had any success recently with Cyberknife? The tumor has invaded his portal vein and is about 4.5 cm.
What should I expect? How is this cancer going to affect my dad? Now that surgery has been ruled out, my biggest concern is making sure that my dad does not have too much pain as he fights this. AND WE WILL FIGHT IT.
I have an 18-month-old son at home, and he lights up whenever he sees his grandfather. I truly believe that my dad was born to be Carter’s grandfather, and I just can’t imagine that he won’t be around to see him grow up…
Thanks for letting me share,
Charlene
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