Discussion Board Forums New Developments International CC Guidelines on the way!

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    Thanks Marion, Lainy and Gavin!

    I think this is very important news for several reasons, not least because the ILCA have considered Cholangiocarcinoma important enough to warrant being the subject of the first of their International Guidelines to Diagnosis and Treatment.

    Also, the liaison between the UK and USA on this matter is of particular interest to us in the UK, and will, hopefully, lead to more consensus on the treatments used – the seemingly different approaches can be very worrying to CC patients currently.

    And, yes, the level of expertise being brought to the table is certainly impressive. Great to know that the right people are on this job!

    AMMF has close links with both Dr Shahid Khan and Dr John Bridgewater here in the UK, so if we can prise any info out of them, we will certainly share it.

    Another step along the road …

    With love and positive thoughts for our CC family across the world.




    Thanks for this Helen, very exciting and welcome news indeed! Lets hope that much will come form this that will be beneficial to everyone.

    Looking forward to hearing what comes from this.




    This is so exciting, Helen. And Marion, look who your Chair is!!!


    Hi, Helen…thanks for bringing this up. I am impressed with the line-up of experienced physicians involved in this important development. Good news for all CC patients, worldwide.

    Thanks much,


    Here in the UK, there is often considerable confusion over the treatments paths for cholangiocarcinoma that seem to differ from country to country. It is, therefore, very welcome news that The International Liver Cancer Association are producing their first ever International Guidelines on liver cancer and have chosen to do this on Cholangiocarcinoma.

    There will be representation from five countries on the International Expert Panel, and including Dr Shahid Khan, one of AMMF’s advisors, and Dr John Bridgewater, both from the UK. The full panel will be:

    Chair: Professor Gregory Gores (USA)
    Dr John Bridgewater (UK)
    Dr Shahid Khan (UK)
    Dr Tushar Patel (USA)
    Professor Tim Pawlik (USA)
    Professor Young Nyun Park (Korea)
    Professor Josep M Llovet (Spain)
    Dr Peter Galle (Germany)

    The planned deadline is December 2012.

    The international guidelines will not replace the revised UK national CC guidelines (just awaiting final approval and, once published, they will be put on AMMF’s website), but are expected to be similar as they will be applying the same evidence base.

    Another step forward!

    Helen x


    (ILCA, http://www.ilca-online.org/)

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