intro
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- This topic has 12 replies, 9 voices, and was last updated 8 years, 5 months ago by iowagirl.
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May 23, 2016 at 3:00 pm #91913marionsModerator
Dear Mariza…..please accept my most sincere condolences on the passing of your dear Dad. Life without him will never be the same, but with time you too will come to cherish that the love you hold for your Dad will become a memory and this memory will become your treasure for the rest of your life.
Hugs and love,
MarionMay 23, 2016 at 4:27 am #91912lainySpectatorDewar Mariza, I am sorry to read about your Dad and please accept my humble and deepest sympathies. Your Dad will always be around you as Father’s don’t really leave their children they just go in to the next room.
I’M STILL HERE
I’m at your side each night and day,
In your heart is where I’ll stay.
You can feel, see or hear, I am not gone, I’m always near.
I’m the colorful leaves when fall comes round,
The pure white snow that blankets the ground.
I’m the first bright blossom you’ll see in Spring.
The first warm raindrop that April will bring.
I’m the first ray of light when the sun starts to shine,
And you’ll see that the face in the moon is mine.
I’ll whisper your name through the leaves on the trees,
And you’ll feel my presence in the soft summer breeze.
I’m the salty tears that flow when you weep,
And the beautiful dreams that come while you sleep.
I’m the smile you see on a baby’s face.
Just look for me, I’m every place!May 22, 2016 at 10:44 pm #91923iowagirlMemberMariza,
You have my sympathies . It is very hard to get through the death of a father….esp one with whom you are close. My dad died of a different cancer, back in 1985, but his death came very quickly……just a couple weeks after his first symptom and within 48 hours of a positive biopsy disgnosis for a cancer that is also rare like bile duct cancer. He was 5 8 years young……..but no matter what their age, we have a hard time losing our dads. I still miss him very much…..over 30 years later. But, my thou ghts of him are rarely of his final days, but instead the positive things about him and how he always was a great day and did things with and for us. I hope and wish the same for you.
J ulie T.
May 22, 2016 at 10:18 pm #91922darlaSpectatorDear Meriza,
I too am so sorry to hear that your father has passed away. You and your family have my deepest sympathy.
Hugs,
DarlaMay 22, 2016 at 5:34 pm #91921gavinModeratorDear Meriza,
I am so very sorry indeed to hear of the passing of your dad. Please accept my sincere condolences. I too lost my dad to this cancer back in 2009 and I so know the pain that you feel right now. Please know that we are all here for you and my thoughts are with your family right now.
Hugs,
Gavin
May 22, 2016 at 11:09 am #91920middlesister1ModeratorDear Meriza,
I went back and read your introduction and was so very touched by the love that came through and the humor your father showed.
My heartfelt condolences are with you and your brother,
CatherineMay 22, 2016 at 9:58 am #91919lynn-from-downunderSpectatorDear Meriza,
Sorry to hear of your Dad’s passing.
Strength and big hugs to you!
May 22, 2016 at 4:49 am #91918daughter-mSpectatorMy loving and wonderful Father passed away May 10 2016. We were lucky for both my brother and I were by his side. We had not expected him to die that day having met with the doctor just a half hour before he died. My Father had remained in his own home until 2 hours and 20 minutes before his death. … he hated hospitals! My brother was telling stories of their past …… my father was conscious but unable to speak …. and then it was his time. We were blessed to have a Father with so much love and integrity to raise us. I will now miss him for the rest of my days. Thank you again for this website.
March 21, 2016 at 4:24 pm #91917nancyelisabettaSpectatorDear M,
Welcome to this wonderful site. Just wanted to say that my dear mum was 90 when it was discovered she had cc. It was all very sudden and after diagnosis at the end of August she passed away the beginning of October. It doesn’t really matter how old she was, she was my best friend and for me the loss has left a huge hole. She had no pain relief at all, even though she was asked continuously if she was in pain. Not sure if that was normal but I have to say there didn’t seem to be any suffering except she didn’t seem happy about her time coming to an end. Palliative care ensures symptoms are managed, and so there should be good pain management in place if that becomes an issue.
Sending you a virtual hug. Keep in touch,
Nancy x
March 18, 2016 at 9:27 am #91914middlesister1ModeratorDear daughter,
I am sorry your dear father has this diagnosis. My thoughts are with you and Dad-
Take care of yourself,
CatherineMarch 18, 2016 at 12:57 am #91916marionsModeratorDear Daughter……no matter what age, receiving this type of news is never welcome, but I do not believe that you Dad needs to suffer. There is plenty of medication for easing of symptoms. Most likely you have been made aware, but thought to mention it regardless. The biliary stent reduces the bilirubin, hence your Dad’s yellow coloring should gradually diminish and possibly vanish all together.
But it is of high importance for your Dad’s temperature to be checked on a regular basis. Stents have a tendency to clog with debris and if not replaced can cause a bacterial infection called cholangitis. Most often plastic stents are replaced anywhere from 8 weeks to 12 weeks.In regards to dementia I recall a young mentally impaired patient diagnosed in Canada. Her sister worried about disease progression and how it possibly could be difficult to deal with however; with special care everything worked out in the most beautiful way. I wish the same for your Dad.
Please stay in touch, we are in this together.Hugs,
MarionMarch 17, 2016 at 1:11 pm #91915lainySpectatorDear Meriza, I really understand what you are saying. I am not sure if what I feel is going to come out the right way BUT I get so upset when I hear that someone has been so lucky to go through life so beautifully and then when they are blessed to reach that ripe older age they get encumbered by such a devastating illness. Same goes for someone who is too young but this monster CC has a life and mind it seems of it’s own. Dementia is just plain weird. My Mom lived to 94, pretty darn healthy and dementia started. One day she fell and hit her head and had no pain. She was in assisted care at that time and it seemed no matter what, her pain senses were gone. I LOVE your Dad’s sense of humor. I have to remember that one. Just enjoy what you can for now and later you can depend forever on many loving memories. You never know how strong you are until “strong” is the only choice you have!
March 17, 2016 at 6:53 am #12286daughter-mSpectatorI would like to fist like to say is thank you for this site and comment board. Reading the cancer information and personal stories has helped me deal with my father’s terminal illness. My father’s circumstances are quite different from most patients represented here and my heart goes out to all of those affected with such a horrible disease so very young.
My 93.5 year old father was diagnosed 2 weeks ago after being admitted to hospital with jaundice – no other major symptoms other than being extremely tired. We have been expecting him to die sometime in the next few years for he has been steadily declining and most people are not alive that many years after they were born. He has out lived his friends, wife and one of his children. The ER doctor did a CT scan and stated he had non – operative cholangiocarcinoma. A palliative stent was inserted and he is now receiving palliative care at his home with 24 hour care until things are not manageable and then he may be transferred to hospice.
All of this is shocking for despite his very advanced age knowing that my father now has an expiry date not too far in the future from cancer is heart wrenching. Knowing that he has had a good and long life does make this situation different from most of the other posts here. But love and grief does not listen to logic and one is still devastated by the news and the reality of seeing your loved one suffer as he exits this world.
My father has dementia but had and one of those wonderful lucid moments when the wonderful ER doctor told him he so eloquently and sensitively that he had a bad cancer. My father smiled and asked if he could trade it for a good one (he always had a good sense of humour). The ER doctor told him h would eventually stop breathing and his heart would stop and asked if he was ok with that. My father said he was ok with it as long as others (meaning me) did not suffer too much.
My biggest concern / problem with this cancer diagnosis will be pain / symptom management along with his dementia. He does not remember what has happened to him and his mental status has declined. Hopefully he will not suffer too much.
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