Glad you found your way to this board – it’s a great resource.
I would recommend that you check out the blogs, which can be found under “General Info.” The blogs should give you an idea of the process – both good and bad.
You indicated that your son will start chemo. Because there is no established course of chemotherapy for cholangiocarcinoma, it’s a good idea to get a few more opinions. This way your son will have plenty of information to base his treatment upon. Don’t ever let him forget that his treatment is in his hands. The doctors are there to provide guidance, but your son holds ultimate control over his treatment.
I would also recommend contacting the Lester’s. They are in Houston, and Kelly is getting treated at MD Anderson. They may be able to pass on some useful advice. You can find their blog under the General Info section.
I’m sorry that your son is going through this. He will be added to my ever-growing prayer list.