Glad you found your way to this board – it’s a great resource.
I would recommend that you check out the blogs, which can be found under “General Info.” The blogs should give you an idea of the process – both good and bad.
You indicated that your son will start chemo. Because there is no established course of chemotherapy for cholangiocarcinoma, it’s a good idea to get a few more opinions. This way your son will have plenty of information to base his treatment upon. Don’t ever let him forget that his treatment is in his hands. The doctors are there to provide guidance, but your son holds ultimate control over his treatment.
I would also recommend contacting the Lester’s. They are in Houston, and Kelly is getting treated at MD Anderson. They may be able to pass on some useful advice. You can find their blog under the General Info section.
I’m sorry that your son is going through this. He will be added to my ever-growing prayer list.
My son age 45, with 2 children and a lovelywife, has been diagnosed with CC. He has a great attitude and is otherwise healthy. I don’t know what to expect and the information that I’m getting on the Internet is pessimistic. The information that I”m getting from my daughter-in-law is vague.
I came out to the West Coast (where he lives) to consult with an oncologist. I was with them when they received the diagnosis which originally was “pancreatic cancer”. The next step was to get him to the renowned MDAnderson Cancer Ctr. in Houston, Texas where (today) the new diagnosis is Cholangio Carcinoma. They are starting him on a round of chemo.