Introduction
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Lisa:
Prayers are coming your way from Wisconsin. I hope and pray that they get you onto a chemo that works, radiation will most likely zap that tumor back!
Hugs,
MargaretHi Lisa,
I am sorry to hear of this latest news about your CT scan and the Gemzar. But please do not give up hope or the fight. It is good to hear that your doctors have another plan in mind for you to start straight away and I wish you every success with the radiation. Please keep us updated on how this goes and also know that we are all here for you.
Best wishes,
Gavin
Lisa…I am so sorry to hear of the latest development. On this site I have observed a wide range of disease progression – slow to aggressive – with or without treatment protocols. The same goes for response to therapies. (There are numerous reasons for this although; most of these reasons are not well understood.)
Therefore, dear Lisa, let’s keep on the boxing glove. You have an aggressive thinking physician in your corner and great people, like our Maria to support you, cheer you, and stand by your site.
Hang in there…and please, keep us posted.
We are in this together.
All my best wishes,
MarionLisa, I’m sorry you have to start a new battle again, but you don’t seem like the kind of person to give in because of things being dificult.
I would really recommend the book Anticancer by David Servan Shreiber if you didn’t read it. There’s a lot about food and how that affects cancer.
I started out in april 2010 with one big and ten small tumors in my liver, unresectable, and still going strong. I’m sure, and so is my doctor, that the way I live has been just as important as the chemotherapy in achieving this.
Hope and light!
MariaLisa I am sorry to hear about the chemo but as long as another game plan is in place please do not loose hope! If the second tumor is under 7 cm you might want to ask about Cyber Knife. Teddy had radiation to bring his tumor under 7cm (25 treatments) then they performed the Cyber Knife. It’s laser treatments of about 1 – 4 treatments.
My Cat scan today showed the tumor we knew about but also a new one. The doctors agree that the Gemzar is not working so that will be stopped and I will start radiathon next week. here we go again.
Hi Lisa,
Welcome to the site. So sorry that you had to find us all but I am glad that you have joined in with us as you’ve come to the best place for support and help. And you will get tons of both from everyone here and please don’t be afraid to ask questions and we will do what we can to help in answering them.
As to your question about an alkaline based diet, we have a great nutrition board here that may be of help to you in looking into that and uit can be found here –
http://www.cholangiocarcinoma.org/punbb/viewforum.php?id=12
Also, using the search forum function at the top of the page will throw up any discussion about this or indeed any other topic at all. Looking forward to hearing more from you.
Best wishes,
Gavin
OMG Lisa,
I just saw that you were from Akron, Ohio. We live in Uniontown. You are the first person on here that is close to us. I hope all goes well with the CAT scan. Maybe we can get to know each other better. My daughter would love to have a friend that has CC to talk to. All the best to you.
Love, -Pam
Thank you for all of your support. Several of you wanted to know more about me. I am 47 yrs old, married and have two sons..one 20 and one 14. I am being treated at the Cleveland Clinic. My surgeon is Dr. John Fung and he is an amazing surgeon and so caring and compassionate. I go tomorrow for my CAT scan and hopefully nothing new has popped up. I believe I can do anything with God. My faith is strong. I am curious if anyone has altered their diet to an alkaline based diet or ny other diet that has helped. Lisa
Lisa….I would like to follow all others in welcoming you to our site. You are an incredible fighter and I much wish for you to get a break from this all.
Lisa, do you know what type of radiation you will be receiving? Also, do you have lymphnode involvement?
I am glad that you have found this site…we are in this together.
All my best wishes,
MarionLisa,
I just wanted to say welcome to the family. You are such a fighter and I am sorry you have been through so much already. There is always hope and we are all here to help in whatever way we can. Take care and hope to hear more from you in the future.
Love, -Pam
Hi, Lisa,
Sorry I missed your entire 2 messages.otherwise I would have said something by now.
please using email thru this web sites by clicking my name on the left top corner, and you can send me the email thru the forum.
It is very tough to have surgery within the 3 month recovery period and to have another surgery,I had been there ,so I knew how your body feels unless you are very young and strong.
Unless you are up to the 3rd resection and you have no choice other than that/(that means the location of the tumor is so close to the vital organ or blood vessels,there are other ways to treat your type of canner without opening you up each time.)
Where do you reside? in the States? and may I ask how old you are. I know you have intrahepatic cholangio CA.
The challenge of SURVIVING with a good qualtity of life for us(the CCA patients) is a long and winding road ;try to think of it as a chronic disease my be helpful in terms of emotional and psycoloical approach .
Because I donot know about your medical history, if you want further info. please using the email option I mentioned above.
God bless.Welcome, Lisa. You have sure been through a lot the last year and a half. Just know that we, on this site, understand the truly maliciousness of this cancer. We also understand that the folks on this site are second to none when it comes to caring and sharing.
God bless you and our prayers are with you as you undergo chem + radiation. Let’s get the last tumor under control.
Lisa, Welcome to our amazing family! Wow! You have really run the gamut with this CC. One of our true warriors and already a survivor! We are a curious bunch here and would like to know where you are being treated and a little more about yourself. It does sound like you have a pretty aggressive ONC and that is good news. How are you feeling now after all the surgery? We are sorry you had to find us but glad you did. Please keep us posted as we have the most courageous, caring and knowledgable people here from all over the world.
Lisa:
Welcome to the site that no one really wants to join! But now that you are here, you will find that you have found the best site for support. We will become like a part of your family.
You can post any question, thought, rant and rave to your hearts content.
How old are you? Where are you getting treatment? Where are you from? Tell us a bit more about yourself.
Again, welcome to our family!
Margaret
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