Introduction

Discussion Board Forums Introductions! Introduction

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  • #91631
    middlesister1
    Moderator

    Karol,

    Welcome to our group and congratulations on being able to have the surgery. I hope you have a quick recovery and look forward to hearing many great progress reports.

    Take care,
    Catherine

    #91630
    kvolland
    Spectator

    Karol,
    Welcome to the best little family no one really wants to be a part of. You will find tons of support here and lots of information. Remember there is no such thing as a silly question around here.
    My husband had an extra-hepatic tumor. He had surgery first with a liver resection with a left lobe and caudate lobe resection. He had a heptaicojejunostomy with roux-en-y…..they removed all of the bile system including his gallbladder and then brought a portion of his small intestine up to replace that. He had many nodes removed with that of which one was positive but he did have extension along nerves and the lymph system. He had negative margins on the second try.
    They are always pretty complex surgeries. The biggest thing I can say is lots of protein (unless doc has said not to) to assist with wound healing. If you are having trouble eating proteins you may need to try protein drinks and such. Also take things slowly. Keep moving but don’t overdo it.
    Good luck,
    KrisV

    #91629
    marions
    Moderator

    Karolm…..congratulations on your successful surgery. I hope that your healing continues in a steady and uneventful way.
    Liver resections are complex; surgery techniques vary and are dictated by tumor size, locations and other variables. Ultimately the goal is to remove the tumor invaded tissue while preserving enough life sustaining liver volume. Based on what I understand, it appears that in your case the surgeon utilized portal vein embolization to help the left side of your liver re-grow prior to resecting the right side of your liver.
    I hope for others to chime in on this conversation and help support your through the healing process.

    Hugs
    Marion

    #91628
    lainy
    Spectator

    Dear Karol, welcome to our remarkable family and the best place to be for CC support. Congratulations that you were able to have that very best word, surgery. I hope for you to have a good healing time and I know it does take time but surgery is one of our favorite words. We were neighbors as I am from Milwaukee. May I ask where you had this all done and who is treating you now. I am so wishing you the very best. Below is a site you may find helpful and please do keep us posted on your progress as we truly care.

    http://cholangiocarcinoma.org/newly-dx/

    #12190
    karolm
    Member

    Hi my name is Karol and I’m new to this but I would like to introduce myself. I was diagnosed with intrahepatic cholangiocarinoma in March of 2015. I had 18 rounds of chemo. The tumor size was 6.9×4.4×3.9 I just had a right hepatectomy including a nonantomic extension into segment Ivb an hepatoduodenal and hepatic artery lymphadenectomy an en bloc cholecystectomy and TAP blocks. I had this done Jan 14. I’m home recovering. A few set backs but now trying to move forward. I was wondering if anyone has had this done. The chemo only shrunk the tumor a bit but enough for the surgeons to remove the right liver. I did have a coil put in to block the flow to the right lobe to let the left lobe grow to be my main liver so the Drs can take out the right lobe with the tumor in it they did find other tumors that stayed in the right lobe.

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