It’s back after everyone thought I was ‘cured’ =(
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Hi,
Sorry to hear about the recurrence after 4 years.
You may not know that I am also a CCA patient for 31months and resected twice;currently is between treatment plans.
I try to find out whether you had intrahepatic or extrahepatic CCA,but I could not find out the answer to help. I only know that you were diagnosed around 3/2007, had resection with positive margin and lymph nodes involvement;on simvastatins for several years but I do not know what treatments you were on BEFORE and NOW. If you don’t mind to tell me the name of the drugs or radiation treatment you are on,I appreciated. I am not a doctor but I,like others before me, is not ashamed of having this CCA disease and If I can of any value to my fellow patients,then my job is done.
God bless.Hi again, Deb you did it…you found the key to logging back in to the site. Deb, I hope for someone else to come forward and share their thoughts regarding your forgetfulness.
We have seen, on this site, some mild cognitive impairment due to the side effects of chemotherapy. (Chemobrain.) The symptoms are memory problems, difficult thinking clearly, not being able to focus, mental cloudiness, or difficulty processing information. I am wondering as to how much is stress related. I hope that the visit with the neurologist will shed some light on the situation. Deb, you are going through so much. Please, be kind to yourself and please, do not give in to the feelings of guilt. There is nothing you have done to cause this cancer.
This reminds me of a comment our dear and wise JeffG had made as he was questioning his feelings of guilt for causing pain to his family. I vividly remember his comments:I have not been on here for a long time and I apologize…I could not figure out how to log on again. I think I have chemo brain to the max….seriously loosing it at 50. I found out after several hospitalizations, 911 calls and a false sense of security that so many new sites of cancer have filled my liver. I am also told there is no CURE and have been given 12 months to live. Seriously I am devastated…my 13 year old son is struggling with the thought of loosing his mom. That is really the hardest part for me….leaving my children….I have such guilt over the pain my illness has caused them.
I am doing chemo for pain management but I am trying to convince myself that I have longer than just a year maybe 7 yrs or 20? I’ll take whatever I can have and be blessed to have time with my family and friends. I do have a question to ask about chemo side effects……I get the normal nausea and fatigue but my memory is getting kinda scary like I forgot twice already what side of the road to drive on…what the heck is that all about? I have an appt with a neurologist in December but by then I might forget who the heck I am…lol Now that I have figured out how to log in I hope to catch up with everyone…it has been far too long. I was diagnosed in march 2007,deb
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