It’s back! Cholangiocarcinoma
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You did it and you did it well. Congratulations. Now looking forward to a fantastic report.
Hugs,
MarionBrigette, I am sorry how upsetting everything has been, I hope all goes well with your upcoming scan, take that wonderful dog for a walk on a pretty spring day, and try to be as upbeat as he / she is and live for the moment. Take that lab to the water with a tennis ball and all fun breaks loose. I wish you the best, Pat
YEA! Crossing everything I own for a good report. Looking forward to it and know that your attitude will go far in every way to help. Nice to get this done!
My Last chemo today! I now have to wait until 19th April for a scan and will see my oncologist on 21 April. It is a relief to get a break from chemo. I hope I won’t have to go through it again but if I have to. I will cross that bridge when I get to it.
Good luck too ! I was also on gem/cis after resection and so far ( 2 months ) no tumors. Although my afp is high and the docs don’t know why
Thank you for your comments,it is giving me hope. I have 5 more chemo session until my next scan in April. The first one didn’t give me any significant side affects just heartburn and slight weakness in my muscles and occasional light headedness. I try to live in the present and ask the good Lord for strength each day.
Take care
BrigitteBrigette,
I had six months of gem/cys and got 60% tumour reduction. It was a harsh regime and I suffered extreme fatigue and horrid mouth ulcers, but the result meant Ithat following treatment I had 18 months before the tumours stared growing again which gave me excellent quality of life. Everyone reacts differently and there is little advice one can give because of the differng reactions. I would suggest that you drink plenty of liquids. (2-3 litres every day) and get advice as soon as a side effect occurs.
I wish you luck
Sandie xI did Gem/Cis for 6 months with stable results, but horrible neuropathy developed as well as hearing loss after that time frame. Each of us handle it differently, take it one treatment at a time and let your doc know of any troubles right away. Take care, and keep us posted. You got this!
MelindaBrigitte,
I’m very sad to read your update. As Marion said, many here have been on Gem/Cis. I wish for you minimal side effects coupled with great results. My mother was on GemCis, and after they adjusted her fluids and added steroids to her treatment, she was able to keep side effects tolerable.
Catherine
Brigitte….Gemcitabine and Cisplatin comprises most used drug combination for this cancer and I am sure that others will share their experiences with you. Wish the cancer had not returned so quickly, but as you so mentioned it was caught early.
Hugs,
MarionAfter my surgery in July I didn’t have chemo as the surgeon had removed all of the tumor along with the left lobe of my liver. My last scan shows there are 3 or 4 small lesions so will be starting chemo on Thursday. I didn’t think it would come back so soon and was hoping it wouldn’t come back at all. The drugs will be Cistlatin and Gemcitabine every 2 weeks for 3 months. Has anyone had that treatment and was it effective? My oncologist says it is a wait and see scenario and since they caught it early it should be okay.
Brigitte
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