jaundice
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Marion, please let me know what I need to do to get the supporting documentation for obtaining the Nexavar treatment. I have been surging the web to find some but haven’t found much…..It would help so much and just at the right time as I am getting ready to file the appeal. Thanks, Bob
Bob…..if your physician needs supporting documentation then please, let me know.
Hugs and love,
MarionBob, if your insurance company has denied the use of Nexavar for treatment, your Oncologist should be able to write them a letter with supporting documentation. My Oncologist knew upfront that my insurance company would deny my current treatment. So, he wrote them a letter with his supporting documentation, and they approved it in less than 2 weeks. Do not give up!
Sending prayers and good thoughts your way.Cindy
Dear Bob,
My husband has Stage IV ICC. He had a resection in August ’08 and then multiple tumors appeared in March ’09. He has been treated with Fulfox, Gem/Cis and Xeloda. He was also getting Avastin along with these. He was tested to see if he would qualify for radioembolization but he had too much leakage into his stomach cavity. We went Thursday for him to be treated using chemoembolization. His main side effects have been stomachache, flu-like symptoms, headache and weakness. While in the hospital, his blood pressure spiked and he threw up several times on Friday. The doctors seemed to be pleased with the procedure and said they targeted the two largest tumors on one side and that there is another large one they may want to try once he has an MRI in a month to see how effective the procedure was for him. Try whatever is out there for Sheila and keep asking questions. Knowledge is power. Wishing the best for both of you, PeggyP
Bob, excellent idea. Go to ER..no one is going to turn away a Jaundiced patient. You will then have peace of mind that Sheila is being taken care of. I was just a Caretaker so I practice GUT 101 and your gut is right on! When things appear wrong they usually are and ER would be the place to go. Don’t know how far you are but bundle Sheila up and go, go carefully and please post us.
Thanks again for the help. I am going to go to Mayo asap. I am trying to decide whether to wait for an appointment or just go to the emergencey room. Any advise on that? Sometimes it takes a few weeks to get in if you wait …… so I might just pack up and jump in the car. Yes, our oncologist has never treated CC before, but he has been conferencing with an oncologist from Mayo so we thought we were getting help from there also.Thanks again……This website is a godsend with all the help it offers to all. Bob
http://www.nlm.nih.gov/medlineplus/ency/article/000263.htm
Bob, I don’t understand this ONC. Has he treated CC before, my guess is no. Please go to the above site on the Internet. I just found it and it really gives a simple and a good description of what causes Jaundice. Then I would suggest calling Mayo tomorrow as a Major Cancer Hospital like Mayo is the best to deal with CC and especially all that Sheila has through. Teddy had a Whipple, his right ureter was bent due to the CC pushing it so that was stented, he had small hernias from the surgery, he had fisutlas and yet they stented him through the side. Jaundice can mean an infection or a blockage. No one has to suffer with Jaundice. Please keep us posted.
Thanks for the help. Sheila is being treated here in Bismarck, ND. At the beginning of this journey we went to Mayo, then back here for chemo for approx 6 months, then had liver resection at Mayo then CC came back after 3 months. Since then have been trying chemo until the last 3 months or so. That is when she started getting the edema and ascites. She has been doing Spirolacton (sp) and Fuerosimide (sp) dieuretics for 3 months. Now have the swelling under control but now the liver functions are up and she has the jaundice. The doctor here says that the cat scan doesn’t show a blockage and that he thinks there are too many tmors to put in stents or even possbly an external drain? I don’t understand why an external drain might not work. Will be seeing him next week and also try to see if going back to Mayo would help. Thanks, Bob
Dear MCF, So sorry to hear about Sheila. We just had a thread on this, I think, under Pru from Australia re her husband Gerard. Teddy’s stent was external before and after his Whipple. The Radiologist goes in guided by an imaging machine (forgot the name). They are given a twilight sleep and it takes maybe 30 minutes or less. He had no problem filling the bag. Not sure but perhaps its the Jaundice bringing her down. Honestly I would get a second opinion! By taking care of the stent situation she will regain strength again and perhaps then some other plan can be put in to play. She must get the jaundice taken care of. Best of luck. Where is Sheila being treated?
Dear mcf,
Sorry to hear about Sheila. I was jaundiced and bili level was up to 19 and had 2 stents placed before surgery. At first they were internal but wasn’t draining fast enough so they added external drain which helped me a lot.
Wish you and Sheila best of luck.LeeAnn
Not very good news. Sheila is jaundiced and liver functions are elevated and very tired to go along with her being very slow with her thinking processes. The doctor says a stent won’t help opening the bile ducts since there are so many tumors in her liver. I was wondering if an external drain might help???? She is so tired she can’t hardly shower or make the bed. Sleeping most of the day. The insurance company has turned her down for the Nexavar. I don’t think she would be able to tolerate any more Cisplatin if we were to try anything. Anyone have any ideas about Chemo that actually can be used for Cholangio??? It is so frustrating to get shot down on all the treatments that could possibly help…..Experimental or off label……denied, denied, denied. Just not sure what to try…….
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