Jaundice and Complications
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- This topic has 22 replies, 11 voices, and was last updated 11 years, 4 months ago by clarem.
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August 24, 2013 at 8:03 pm #68383claremSpectator
Dear Mel,
I am sorry to read that your mum passed. Despite your loss, your kindness in considering those battling this disease and wanting to give them hope and a reason to fight is very touching.
Your mum must be looking down feeling incredibly proud.
X
August 24, 2013 at 1:21 pm #68382lainySpectatorDearest Melissa, I am so very sorry to read of your Mother’s Passing. From what you write she must have been a remarkable woman full of grace and dignity. In time your best memories will overtake her journey to the other room. She will always be around you and you will find so much comfort in her presence. My sincere condolences to you and your family.
Those we love must someday pass beyond our present sight…
They leave us and the world we know without their radiant light.
But we know that like a candle their lovely light will shine
To brighten up another place more perfect…more divine.
And in the realm of Heaven where they shine so warm and bright,
Our loved ones live forevermore in God’s eternal light.August 24, 2013 at 7:20 am #68381iliasMemberDear Melissa,
Passing my condolences to you and your family. My thoughts are with all of you
Louie
August 24, 2013 at 6:40 am #68380willowSpectatorMelissa,
Sincere condolences on the loss of your mother and thank you for sharing her story.
WillowAugust 24, 2013 at 6:00 am #68379gavinModeratorDear Melissa,
I am very sorry to hear this news of your mums passing, please accept my sincere condolences. Your mum was a real fighter and she certainly fought a long battle with you by her side too. My thoughts are with you and your family right now.
Hugs,
Gavin
August 24, 2013 at 4:20 am #68378mowissa1SpectatorHello everyone! It is with a heavy heart that I have to tell you my momma Sharon Kaye Smith passed away July 9th. Since January she had several stint complications, replacements, infections etc. On June 3rd we went to Dallas for a check up and we could tell over the prior few weeks, something wasn’t right. The pain was to great for her to have her MRI, she was admitted. The infection from her stent had caused a perforation of the bile duct, which caused severe infection in the abdomen. After a day of Iv antibiotics and pain meds, she had several tests which showed new mets to the liver. Dr Goldstien explained her options, 6mos hospital stay, bile duct reconstruction, open wounds before they could even treat the cancer. And with how fast the mets had presented themselves from our last test 45 days prior, well, the out come of no surgery and surgery appeared to be the same. She elected to stop treatment. I brought her home to northwest Arkansas where we entered a wonderful hospice facility and 30 days later she completed her journey here on earth. My point is to remind all of the newly diagnosed and the current fighters, that she was originally diagnosed in August 2004. Almost 9 years! HOPE. PRAYER. LOVE AND FAITH. You will know when it’s time, and until then, my family and I will be praying for you and yours, we will raise money and awareness of this tragic form of cancer, we are here for you and love each of you! I know now what a warrior looks like and thank God for every moment I spent with her. She was truly my best friend and always will be. She said “it’s not goodbye, its only ta-ta for now”. Knowing that is true helps to bring some comfort. All my love, Mel
January 18, 2013 at 11:26 pm #68377marionsModeratorThanks much, Melissa.
Hugs
MarionJanuary 18, 2013 at 5:34 pm #68376lainySpectatorDear Melissa, thanks for posting about Mom’s Doctor, it could help others. Glad the stenting went well and the lung spot may be just that, like a nodule or like Moms says she can get it taken care of. I LOVE her attitude! She will begin to feel good now and her yellow will slowly dissipate. My Teddy was so Jaundice when he was DX and I looked at him and said, “You know I don’t like you in yellow!”. Good luck on everything and I know you will both feel better when you are once again at home.
January 18, 2013 at 5:19 pm #68375mowissa1SpectatorUpdate –
Marion – I posted the Dr info to the link you attached.
Mom had surgery this morning and had the blockage removed and stint put in. They have noticed a small spot on her lung. We are waiting on the Dr to come update us further. They did not seem concerned and neither does she. Her response was, “if I can live 9 years with the fastest most fatal cancer I have ever heard of, rest assured that treatment for the lung doesn’t have me scared.” With an attitude like that, its hard not to be optimistic.
I’ll keep you guys posted, and thanks a million for the support.
Melissa
January 18, 2013 at 6:51 am #68374marionsModeratorMelissa….fingers are crossed for good news coming your Mom’s way. Melissa would you like to add Dr. Goldstein’s information on a thread established by our members for our members?
http://www.cholangiocarcinoma.org/punbb/viewtopic.php?pid=69216#p69216
Hugs,
MarionJanuary 18, 2013 at 3:40 am #68373mowissa1SpectatorThanks everyone fpr your thoughts and prayers! M- we live about 5hrs from Dallas, so not bad but far enough to make you tired.
Susie, She’s a super trooper!
Her doctor is the best! Dr. Robert Goldstein, MD, F.A.C.S, Baylor University Medical Center, Surgical Director, Pancreas Transplantation
Surgical Director, Living Donor Liver Transplantation
Hepatobiliary SurgeryFollowing is a plug for the DR –
Dr. Goldstein is a hepatobiliary surgeon and the surgical Director of Pancreas Transplantation and Living Donor Liver Transplantation at Baylor University Medical Center in Dallas. He is board certified in general surgery and critical care medicine.
He currently oversees the Baylor Liver and Pancreas Disease Center offering comprehensive evaluation and treatment for liver tumors, pancreatic tumors and chronic pancreatitis. He has a special interest in bile duct tumors and injuries.
The following treatment options are available to liver and pancreas patients at Baylor University Medical Center and Baylor All Saints Meidcal Center in Fort Worth:
Chemoembolization
NanoKnife (irreversible Electroporation)
Cyberknife®
Radiofrequency Thermal Ablation
Advanced Laprascopic Resection
TheraSpheres®
Transplantation
Total PancreatectomyJanuary 18, 2013 at 2:54 am #68372pamelaSpectatorBest wishes for you and your Mom. I hope she feels better soon.
-Pam
January 18, 2013 at 1:54 am #68371speppers12MemberPraying for a speedy recovery.
SusanJanuary 17, 2013 at 9:18 pm #68370wallsm1SpectatorMelissa,
I hope you mom gets better soon.. Please keep us posted on her recovery. She sounds like a trooper!
Take care!
Susie
January 17, 2013 at 7:09 pm #68369lainySpectatorDear Melissa, Mom should feel much better after the stenting, if that is what they decide to do. How far do you live from Dallas? Sending best wishes that they correct the problem and send her on her way! Good luck.
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