Just a quick Hello!
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Lainy,
Thanks so much. I was going to speak with the Onc during our appt this week about something for her. As for CyberKnife, I have mentioned it, but everyone seems to feel that she is too weak to receive the treatments? Same thing for TheraSphere.Praying for Mom, it is a roller coaster, isn’t it? As far as Mom’s depression you may want to ask the ONC for an RX. It really does help. I am wondering since the CC has not spread and it is under 3 CM if they have mentioned Cyber Knife? Actually the best Mayo for CC is in Rochester MN. I feel bad that your Mom is dealing with so many other things. I hope things ease up for all of you. Sending you my best wishes.
I havn’t been on in a while. Things have been crazy, but after reading so much I felt I owed everyone a quick update.
– Good News
Mom had her drain tubes changed out, all went well. So far so good, nothing to report. Thank God, no infections, so leakage, no drama.
We have been through 2 rounds of chemo – Just Gemzar because of her kidneys (she is stage 4 failure)
Still just a 2.5cm tumor, not metz, no elevated cancer markers, good billirubions, etc– Bad News
Chemo has SUCKED! we are supposed to be on 3 weeks on, 1 weeks off. So far we have only been able to get through 2 weeks, and then we need another transfusion. Mom is just warn down, she broke out in a terrible rash which took steriods to get under control, which threw off her sugar, so now we started some insulin. She is depressed, and her activity level is next to nothing. Her belly is swollen again, but they couldn’t find any acitis today. So I have no idea why that is.We went to Mayo, and was not impressed, so we are keeping with our current team in Orlando. We met with the Liver Transplant team in Orlando, and he felt that a resection could be an option, but it would be INTENSE and doesn’t feel that Mom in her current state could make it through it. But I am trying to stay positive for her. Dad is exhausted, as am I but what choice do we have. Mom seems very depressed which is a constant battle. Not to mention that even when my sisters are here she is still very dependant on me. Not that I mind, I am happy to be here for her, I just wish she would try to help…It’s tough.
Good thoughts and prayers for everyone who is touched by this monster!
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