Just Diagnosed, SWM 56 with CC

Welcome John – I’m sorry you have to be here but this is a wonderful place to be.

I’m glad your doctors seem keen to move forward; one of the hardest things I found with my sister’s cc is what I saw as the lack of any movement. I see now that they were waiting for her bilirubin to come down but at the time it just seemed like an eternity before any progress was made. Please let us know how you get on.

You won’t be alone here.

Julia

John
I hope I find you well. I recently received the same diagnosis as yourself and I am interested to know how you got on. What advice are you getting from your medical team? What treatment have your received? What was involved and how do you feel? Ger

Hi,
Welcome John. We are a supportive group of folks although it’s never good to have to join our little club, as Lainy often says.

It’s a scary and awful thing, but I think if everybody here could tell you one thing it would be to try to put all the horrible predictions of doom out of your head. THis is a nasty nasty disease and it tries its hardest to harm us all, and honestly, it usually wins. But these days a lot of us are fighting a better fight than was thought possible a few years ago. More people are surviving for longer periods of time, and it is in fact possible to maintain quality of life for some time after the diagnosis.

PLease check in often and honestly, expect this overwhelming depression to take hold of you. That, in some ways, is worse than the illness itself. It’s quite a fight.

Courage,
Irene

Hi John and welcome! Never rule anything out… you just never know what the future holds, and cc impacts everyone differently. You will find a wonderful support group here to help with any questions that arise. The fact that the Docs are wanting to move quickly and collaborating together on a plan for you is one of the best possible scenarios. Come back and pulse the group if issues come up that you have questions on.

You’re in our thoughs.

-Tess

Welcome John and sorry you had to find us but you have come to the best place in the world with the most caring and loving people on earth. Yes, it is scary, frightening and frustrating when first diagnosed with CC. Then you read up on it, find out all you can. proceed with a course of action and all of a sudden those first frights turn to fight and you do what you must do with tons of hope and attitude. It kind of sounds to me like they are talking a Whipple surgery? If so, my husband Teddy is a 4 year survivor of a Whipple and he is now 77. You can look up my posts on him using our search button at the top. Just type in Teddy or Whipple or Lainy. If you would like to e mail me that is also just fine and you can click on email under my name. Sounds like your doctors are right on with it and acting quickly which is what we hope for. Please do not think your days are numbered! No one was born with an expiration date on the bottom of their feet. We have people who have been told they have 2 months and are still with us after 2 years. Please keep us posted and let us know how you are doing.