Just finished cycle 1 of 8 of gem/cis
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January 3, 2011 at 3:35 am #43643sharimayMember
Hello all,
It has been a little while since I last posted. I am finishing my week off from chemo. I am set to start my third cycle on Tuesday. This off week has offered some “bumps”. I was feeling fairly well until I noticed a reddened area on my left breast. Turns out that cellulitis can be common with chemo, you know with my immune system being in the crapper. Along with the uncomfortableness of a sore boob, I was left feeling achy and very tired. I started on a antibiotic and they gave me one dose of IV antibiotic. I am feeling much better. The nurses at my infusion center said that they have had some cases of this type of thing. The thing that bothered me the most with the whole thing was my oncology nurse practicioner didn’t want to deal with it at all. It is frustrating because chemo is causing it, but she said it isn’t what they deal with. I had to go to my primary doctor, which turned out not to be an easy thing with the holiday and everything. I have some awesome support people to vent to, and I did, which made me feel better. I work in the hospital system and I get frustrated, I feel bad for people who don’t work in heath care and how incredibly frustrating it can be for them. Thanks for listening.
ShariDecember 22, 2010 at 4:25 am #43642kimcirucciSpectatorHi Shari. I must say, keep that attitude. It truly helps. I’ve always had an upbeat attitude & tried to laugh as much as I could through many adversities. I was also on the same chemo as you. The only side-effect I had was fevers. I didn’t really have any hair thinning until the end of my treatment, which I believe was when I approached the 4th month. I didn’t even take the anti-nausea meds. They made me feel sicker. I never had any nausea or vomitting. They said it was a harsh type of chemo, but other than a few days with fever & exhaustion, I would bounce right back. I wish you luck with it. I certainly don’t want to make you lose your focus, but the regimen didn’t work for me. Luckily I found a surgeon who removed my tumor when no one else would, so I feel blessed. I’ve been told that I’m a miracle. I’ll believe that when all of my scans come back normal. I don’t think I’ll ever feel completely cancer-free even if they say I am. I don’t think the feeling ever leaves you. However, I know I’m alive today & not many believed I would be, so here’s to miracles. May you be one of those miracles too, along with everyone else on this site. Keep up the great work. I know you will receive good news! Just keep fighting all the way!! My prayers are with you. Keep us posted.
December 22, 2010 at 3:23 am #43641jathy1125SpectatorShari-yea! I always did good during chemo it was usually 2-3 days later that it hit me. I would get tired but not non-functional, just a good nap for about 10 hours. Make sure you keep distance from big crowds and “‘purell”, your immune system is compromised. Enjoy the holidays and don’t get to clutter free! Cathy
December 22, 2010 at 12:08 am #43640slittle1127MemberCongratulations on near completion of cycle 2. My husband felt good on chemo. After a fulfilling and busy holiday season, perhaps you are ready for a little extra rest and some time to do things that matter to you. Enjoy some quiet days and re-energize. Blessings, Susan
December 21, 2010 at 5:50 pm #43639sharimayMemberHello Everybody,
I am sitting in the chemo infusion room as I type getting my second dose in my second cycle. I have been feeling well since the start of my second cycle, I just get tired by the end of the day. I have been feeling so well that I think I overdid things a little this last week and now feel like I am coming down with a sore throat. I celebrated Christmas with my very large family this past weekend. We had all but 7 family members there. It was great to see everybody and it was good for them to see me and be able to see that I am okay. This Christmas was especially hard as my dad is in poor health. So now that the celebrations are winding down, I think I need to bunker down in my house and try to stay as healthy as possible. Time to catch up on some movies and maybe do some de-cluttering. I am glad to be almost done with cycle 2, bring on cycle 3!December 15, 2010 at 12:54 pm #43638sinbadMemberSharimay I will certainly share your chemo experience with my mom. I don’t want to persued her to take the treatments if she really doesn’t want to. I have read your’s and others experience with chemo. I’ve told her that if after 1 five or even ten treatments that she wants to stop she can. I just want every minute I can with her and think down the road she might wonder what if I tried the chemo. Spending the day in the kitchen with my mom, sister and brother. It’s going to be a wonderful day. Thanks for sharing with me Sharimay. Have a wonderful day yourself.
Tracy
December 15, 2010 at 11:59 am #43637sharimayMemberTracy,
My best to you and your mom. I can share her thoughts about chemo and not wanting to feel crappy with it especially when she probably doesn’t feel too bad right now. From postings I have read and my own experience the chemo for CC can be OK to handle. I have been feeling good and my oncologist told me that I look better than my labs do. Attitude is one thing that has helped me through this fight and I am in good shape and still get to the gym 2-3 times a week. It sounds like you and your family are a great support to your mom and she is very lucky to have you with her during this time. I will keep you and your mom in my thoughts and prayers and keep all of us posted on how she is doing. This website is a great place of support and there are great people here with lots of knowledge. Take care and have a great day with your mom.
ShariDecember 15, 2010 at 5:41 am #43636sinbadMemberToday is day two since we were told about the disease. We went to see another doctor today. He basically just confirmed what we were told yesterday. My mom’s initial reaction was that she wasn’t going to take chemo because she’s watched in horror two family members get really sick from the treatments. Today she is contemplating taking the chemo and if she is really sick then she can stop it. It’s really helped me reading what others have and are experiencing during and after their treatments. She was diagonsed at stage 3C and her doctor said if she does the chemo it could be up to a year. I want to spend all the time I can with her now. She is feeling good and the biliruben is under control. It’s hard to believe she’s sick. I just can’t imagine what we are all going to go through. We have an in-law suite in our home and that’s where she’s been for the past ten years. My partents divorced 25 years ago and she is pretty much a home body. She has her three childern my self and two other siblings. We are all very close. I have two boys ages nine and twelve and Grammie is like their second mom. I know we will all some how get through this but can’t even imagine what the road ahead will be like. Tomorrow will be a good day. I’m spending it with my mom.
TracyDecember 15, 2010 at 4:32 am #43635marionsModeratorHello friend and welcome to our site. I am in awe of your devotion to your friend.
I would like to point out another way of contacting members by using the signature box I will use yours as example:
Left hand side, under green bar,
friend
New member
Registered: Tue, 14 Dec 2010
Post 1
I.P. 192.104.231.235
E-Mail……this you would want to click on. It will allow you to mail a personal note.
Good luck,
And please, keep us posted.
Best wishes,
MarionDecember 15, 2010 at 4:21 am #43634friendMemberThis post is for sharimay of Bismarck, ND.
I have a friend here in Bismarck, ND who has been recently diagnosed and is in Mayo now getting her port in, and her chemo prescription.
I understand this is not a common cancer – and I mentioned I was looking on the internet for information and came across your post. I thought it was interesting that another person in Bismarck was going through same diagnosis.
I’m sure everyone’s cancer is different – but it may be nice to have someone locally to stay in touch with as you go through this? I don’t know how this posting works, or how to contact anyone – so this is my first attempt. If you choose not to respond I completely understand – was just trying to reach out for my friend. Thank you for your time, and the best of luck in your fight!December 15, 2010 at 1:55 am #43633kathybMemberShari,
I understand about just wanting to be done and not being delayed as I had a few delays myself.
Have a great Christmas with your family.
Kathy
December 15, 2010 at 1:30 am #43632sharimayMemberHello everybody,
I am happy to report that my white blood cell count was 3.7 today and my granulocytes were 1300, which is much better than the 1.7 and 200 they were last week. I was able to start my second cycle today and they are planning on starting neulasta injections next week after my second dose. I hope that this is going to be my last delay with my chemo. It sounds strange to want to do chemo, but with how long the course is I just really want to get them done and not be delayed. I am feeling good, just a bit tired. I am grateful to be able to handle my chemo so well at this point, and am hoping that the rest of the courses go as well as the first one. We are planning on celebrating Christmas with my large family this Saturday, and I am hoping that I don’t feel too tired. I feel so blessed to have such a wonderful place to post my thoughts and come to for advice and support. Thanks for listening!
ShariDecember 8, 2010 at 12:28 am #43631sharimayMemberHello everybody,
I was set to start my second cycle of chemo today, but unfortunately my granulocytes are too low. I am put off another week to start my second cycle. They think that my numbers should be better by next week. I am going to start neulasta injections with this cycle to hopefully help my numbers. Does anybody have any good ideas for boosting WBC’s that doesn’t interfere with chemo? Thanks for the input.
ShariNovember 30, 2010 at 11:58 pm #43630sharimayMemberThanks to everybody for their thoughts and well wishes. This week so far has been better and I haven’t had any nausea. It is good to hear that other people have felt the same I have so I don’t feel so abnormal.
ShariNovember 30, 2010 at 8:38 pm #43629lilyamongthornsSpectatorHello! My mother in law is on the same chemo cycle with the same cycle time and is coming up on the end of her third cycle and she is doing really well. (She is 53 years old and has stage IV bile duct / liver / lymph node cancer.) She hasn’t lost her hair, doesn’t have any nausea, only a little numbness in her fingers. I pray the same thing for you! Medicine today is amazing at helping to manage the symptoms of the chemo.
Praying for you!
Diane
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