Just had the big “6-0” Birthday – 3.5yrs and going strong!
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Patti,
So glad to hear the good news. The doctor must think that since the small tumors did not show up and two of them did not show much change since the beginning, that it is such a slow growing cancer, then 3 months would be too soon to show any change.
That’s great news. Hope you agree when you see the CD and the report.
Best wishes,
TheresaHi Patty,
I too have the “slow growing” CC according to my oncologist. I have a large tumor in my left lobe and at least two enlarged lymph nodes in my abdomen. I have been taking 10,000 IU of Vitamin D3 for several years for my MS but I think it may have been slowing my CC as well as there have been studies recently that show D3 is beneficial in conjunction with treatment. I wish you continued good news in the coming years and look forward to your next report. God bless you and everyone who fights this battle day by day.
CharlotteHi Patty,
Great news! It does sound very confusing. What about asking for an MRI next time? My husband’s Drs. prefer MRI’s, they feel they show things more clearly than even a PET scan. Tom has also had CAT scans through the years and it makes us feel better when the results of both are the same. This is a very strange acting cancer. He has had no sign of tumors for over 4 years , yet his tumor markers bounce around all over. Have you ever had a biopsy of your tumors? I hope things continue to go well for you. From the beginning I have heard of some people basically being able to treat this as a chronic condition. I think you and Tom are in that category! Take care, MaryHello PattiB and Congratulations on your test results!! Not sure how results from a scan can be too harsh. Think I would like to see the bottom line there. Strange things happen in the CC World. I just realized you are in Tucson, we are neighbors. If you ever come this way please let me know!
Wow, Patty. Looks like great news to me. Congratulations, lucky girl. This is the kind of news that makes my heart jump a beat.
All my best wishes,
Marionhi Rowena32 and all,
My doctor visit was a bit strange. He started out telling me that he “really” thought that the test results were a bit harsh and he really didn’t agree because “they didn’t know” what all (and for how long) stuff has gone on for me. I am VERY much going to get that report!
He said that basically there has been little change. Looking at just the “facts” the two (two??? I thought there were seven!) tumors, they “really” haven’t changed much from the beginning. I asked about the missing tumors and he said ” oh, they didn’t show up on this scan, they were gone” WHAT???????????????????????????????????????????????????????????
Long story short, he said he was fine with me waiting 6 months until my next CT scan (instead of 3 months). So I said “fine”.
I don’t know what all that means. Until I see the report myself, I don’t really know what he is talking about. I trust him, but I continually feel that since I’m still alive and relatively healthy, they just have to wait until something “goes wrong”. I dunno.
I’ll post again when I see the CD of the scan and read the report. Meanwhile, I’m confident that not much HAS changed and that I’m one lucky girl.
All the best to all,
PattiPatti,
Hope you had good news at your appointment on Wednesday. I will be anxious to hear how it went. You are an inspiration to us -3.5 years and going strong!!
Thanks for the list of what you have been taking. I have not heard of these, but I am going to run them by the naturalpatic doctor that I see. I do take Total Omega 3-6-9 and HMF Neuro Powder (probiotic).
Best wishes to you,
TheresaTo answer rowena32 I do not have a stent – my bile ducts were never blocked and my blood levels never raised havoc. My type of cancer is strange at best!
They talk about it being “very slow growing” and there’s been LOTS of debate about just what kind it is. So I doubt anyone can go much by me.Tomorrow afternoon I go see my onc and find out how the Pet/CT scan went.
Response to what supplements I took:
Oh, for a long time I took supplements – A super multi vitamin. It was designed for women, but I assume there is one for men too:
Source of LifeOhhhhhh! Thanks everyone for responding to my post – that always feels sooo good!
I did some more research and called the AZ Cancer Ctr here in Tucson, AZ and they tell me they have a New machine that, as Marions was explaining, puts the two scans together – but since they can do both at the same time, on one machine, they avoid all (most? some?) of the alignment issues. News to me! I’ll let ya’all know how it goes.
Hugs to everyone!
PattiPatty,
What an amazing Post! My mom was diagnosed in Nov and I can’t wait to tell her your story! Thank you for the smiles and inspiration!Patti,
So good to hear that you are a 3 1/2 year survivor. Thank you for sharing this news with us. I have read some of your old postings and really appreciate you coming back on the board to let us know how you are doing. I would like to know if you are taking any supplements and if so, what are they?
Also, I was wondering if you have a stent in the bile duct to keep it open.Happy Birthday and many many more to come.
TheresaHi Patti,
Happy birthday to you!This is great news indeed and I so hope that this good news keeps on coming for you! Many more years of being a happy camper sounds good to me! And also, it is great to hear that you and your sister were able to share a trip to France with each other, now that sounds like fun!! I will keep my fingers crossed for more good results for you with your scans this month.
Best wishes,
Gavin
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