Kris
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Oh Val…..you leave me in stitches (no pun intended) when reading your posts. All sounds good and the real issue has been addressed: hair looks fine.
Best wishes,
MarionHi Betsy!
Drinking? Alcohol? YAY! You enjoy!
Thanks for the hair info, I’ll look up Nioxin & have a read.
My appointment went fine on Friday thanks. I actually saw The Big Man (my surgeon, who is around 6’5” tall!). that worried me for a moment, as I’m used to seeing the lower ranks, but no, they haven’t discovered anything sinister.
He did say that a recurrence as the cause can’t be entirely ruled out but it’s not looking that likely. PHEW!
I know he didn’t find any evidence of tumour recurrence during the July operation so there couldn’t have been anything showing on the drain change cholangiogram either. More PHEW!
Because, we all know that thought is always in the back of our minds…..He was rather concerned that I was jaundiced again, although it’s hardly bad in terms of where I’ve been over the last few months, but obviously can’t be allowed to continue long term.
The drain was flushed & poo has returned to a more normal colour already so can but hope it was just gunk in the drain.
I’ll be getting an appointment for another drain change in the next few weeks. Oh good, that’s something to look forward to!I asked him about the hair loss – he thought my hair looked fine to him! But he’s a man & bald, so it probably would! I’m sure my GP will have a different view, as she’s a woman.
Sorry chaps, I know it’s no fun for you either when this happens, it’s just a little more cosmetically acceptable! To us women anyway. Hope I’m not being sexist there.As for the wind, I’m not surprised it’s been echoing round Pheonix & Cleveland… Things have subsided now, thank goodness, in my case I do get more wind since all the surgery but it gets to this pitch when I’m jaundiced and it’s a improper digestion thing. Horrible, but very funny in a six year old child kind of way!
Good luck for your appointment on the 19th & enjooy your wine until then!
Val x
Hi Val,
I did have significant hair loss after my surgery and I was jaundiced. My doc said it was due to poor nutrition. I did use a product called Nioxin shampoo and conditioner. Its supposed to promote hair growth, The conditioner smells like peppermint and its really a treat. It is sold here in the states and I do think it helped….especially the conditioner. Sorry to hear about the “wind”
What do you think is causing that? I can’t smell much of anything tonight….I’ve been drinking wine! My sister has a theory that the many months without wine has made my liver lazy – it needs a work-out! Since I’ve gotten the green light from my doc, I’m doing my best to test her theory. I’ve been feeling great these past couple of weeks and I think its because I haven’t had a tube change…or maybe its the wine (tee hee). My next appointment is Nov. 19th and I’m kind of dreading it. Oh well, as you said, compared to so many, we have little to complain about. But it does help to share stories.Glad to hear from you. Please let me know how tomorrow goes.
Cheers!
BetsyHi Val, the wind just picked up in Phoenix so I am sure it is on its way to Cleveland. Wait, I think I detect some lavender???? At any rate good luck tomorrow!!!
Hi Betsy!
I have my outpatients appointment with the surgeons tomorrow so will see what they have to say.
I’m ok ta, just fed up with still feeling below par all the time, I think my bilirubin may have gone up again, I certainly have appaling wind…. can you hear it in Cleveland? I may be jet propelled to the hospital tomorrow at this rate!
One thing for general debate, has anyone else suffered from hair loss after jaundice? It happened last time I had it & my hair had just about recovered by the time of this bout but I’m shedding loads – just as well I had plenty to begin with.
I have looked this up on the web& it seems likely it’s the after effects of lack of nutrition during the juandice period. I just hope it stops soon!
But enough of the whinging & whining, compared to so many on here I have little to complain about.
How are things with you?
Val xHi Kris, what a pile of pants you are having!
I am so sorry it’s all taking such a time to sort out, here’s hoping the tube in a tube will get you sorted soon.
You’ll be able to regale us with tales of morphine dreams & suppository hell soon, you take good care, I think of you so often & wish there was something more practical I could do to help, I guess positive thoughts & good wishes will have to do for know. love Val xxxDear Kris,
We’re all sending positive thoughts and prayers that your Docs get this figured out. I can’t imagine what you’re going through and feel so bad that you are suffering so much! Take care.
Love, MaryKris…from what I have learned is that due to the position of the tubing it easily can kink. So far your physicians have been with you all along by being aggressive and progressive with their approaches. I trust that they will find a way to make this work. Oh, I wanted to mention that I bought my very first PURPLE colored rain coat. I had other choices, but this one reminded me of you and that was good enough for me. I will send you a picture.
Huuuuuuuugs,
MarionHi Kris,
Great to hear from you and thank you so much for letting us all know how you are doing. I am sorry to hear what you are still going through right now and I am so keeping my fingers crossed that this tube within a tube plan works for you, and works fast!
Thinking of you loads and sending tons of positive thoughts your way.
Hugs,
Gavin
Kris: So hopeful for you and that the docs figure it out quickly for your sake! Sending lots of prayers your way from Wisconsin.
KEEP KICKIN’ THAT cancer girl! We still need you here!
Hugs,
Margaret and TomHang in there. You are my inspiration. I think of you all the time. You are the most positive person and that helps us all.
God bless and keep you.
Charley
I’m sorry that you are going through such difficult times. You and Hans continue to be in my thoughts and prayers.
Love,
LisaOh Kris,
Appreciate the update, but am so sorry to hear all of this. It is amazing through all this that you still have your wonderful sense of humor. You are a special person and I am still hoping & praying that somehow something can be done and things will improve for you. Thinking of you, Hans and your family.
Tons of Love & Hugs,
Darla
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