March 18, 2013 at 9:29 pm #69642RandiParticipant
sending you so many positive thoughts and wishes Kris!!
-Randi-March 18, 2013 at 2:30 pm #69641gavinModerator
Loads of positive thoughts are heading towards you Kris. Everything is crossed for you and I hope the rad onc gives you some good news and a new plan.
GavinMarch 18, 2013 at 6:23 am #69640
Kris, wishing with all my might that today you get your “moments in time”.March 18, 2013 at 6:10 am #69639marionsModerator
Kris….and me too, Kris. Fingers and everything crossed for the consultation to bring about another way of attack.
Hugs are heading your way,
MarionMarch 18, 2013 at 5:53 am #69638willowParticipant
Me too, Kris. Keep us posted and here’s a hug for you and a wish for peace of mind. WillowMarch 18, 2013 at 5:46 am #69637
Well, I go tomorrow to talk to the rad onc. I just hope he has some ideas of what to do…March 12, 2013 at 8:26 pm #69636
Here’s more. I got the results of my cancer bloods. Everything is down. My ca19-9 is at 62 which is the lowest it’s ever been (its been as high as 1074). My alphafetaprotein is 2.8. The only time it’s been lower is one year ago today. My CEA is at 2.7. It has basically run from 2.3-3.5 most of this journey.
My alkaline phosphates is high at 160. But it hasn’t been under 130 yet. And my bilirubin is basically a constant 0.9. Red, white and platelets are all still a little low, although only platelets are outside “normal” range. Everything else looks good.
And, yes, I spent time licking my wounds. Even got drunk last night, although I know alcohol is one of the worst things for you. And I didn’t get drunk enough! Just 3 drinks, but it prob put me over the limit. Today I hid. Tonight I go back out in public with my public face (which stayed home last night) and work and play poker and sing.
And, on a side note, one of my new songs is Mary Chapin Carpenter’s I Feel Lucky. It was playing on the radio as I drove to the station. And I rerouted around a huge traffic jam and made the train with 1 minute to spare! It was a “lucky” morning and I was so sure I was going to hear good news…. BLAH!!March 12, 2013 at 4:51 pm #69635
Dear Percy, You are so right in your thoughts for Kris. I heard a good one the other day on a TV Movie. I think this is so true! “God has a plan AND he doesn’t have to ask us for permission”. So, we do the best we can and I agree Kris is a real warrior
and her great attitude is shining through even if it is not seeming so to her. And you, are such a good example for us all!March 12, 2013 at 4:06 pm #69634pcl1029Member
You are a happy warrior , your positive attitude shines through in your message yesterday even the result was not what you expected. It takes a lot of courage to report those unexpected occurrence.
This disease is unpredictable ,difficult to diagnosis and prognosis is uncertain. But there are more research being done for this disease and hopefully some good treatments will pop up in the future for all of us. However a magical bullet is still far beyond reach .That is why I pray each nite and thank Him for the good fortune God give me all these extra days since my diagnosis in May,2009. Only He knows when the time is come for each of us. your joyful spirit and courage will lift up a lot of others on this board. Thanks and
God bless.March 12, 2013 at 3:43 pm #69633
I am so sorry, Kris. But does ANYTHING about this CCC (Crazy Cholangio) make sense? IF it did none of us would have to be here and go on our merry way. I thnk I know you girl and it will take a few days to reconoiter and regroup and you will again be on your way! Like my T used to say, “now we know what’s wrong, lets fix it”.March 12, 2013 at 3:27 pm #69632
I just feel like I got kicked in the gut!! How can the old cells still be behaving and new ones pop up? Why dont I know when this happens?? We have all gotten so used to listening to every blip in our bodies: I can’t stand that when I’m confident, that’s when things go wrong.., and when I’m nervous because of some twinges, feelings, etc, everything is status quo. It doesn’t make sense.March 12, 2013 at 10:50 am #69631gavinModerator
Grrrrrrr……. Sorry that you are not posting in the good news section Kris like you and all of us hoped that you would be. Yes, as you say, not the best news but not the worst either. I so hope that you will get much better news from your meeting on Monday with the rad onc and my fingers are crossed for the for you. Go play a few hands of poker, sing a few of your fav classics at the karaoke and worry about Monday on Monday if you can.
Take a big hug too,
GavinMarch 12, 2013 at 9:03 am #69630willowParticipant
€%#*€£¥!!! I’m adding my sentiment to yours…
It is ironic that you’re too healthy for a treatment like ablation though it sounds like Dr Fong wants to keep it that way. I certainly see how phase 1 or 2 clinical trials don’t sound appealing now that you explained them. Please know you are in my thoughts as you meet with rad dr and make a decision for a plan of action.
WillowMarch 11, 2013 at 9:57 pm #69629marionsModerator
Kris….as you said – not the best of news and not the worst of news to receive. And, you have options for possible treatments – that is the good news within the not so good.
Hang in there, dear Kris -the glass is still half full.
MarionMarch 11, 2013 at 9:54 pm #69628
Kris, ok, so, not the worse but just a few too many maybes. Like me, you want definites. At least you may have an answer next Monday. The important thing is you are in good hands and still have options. Get busy girl on your Poker Event!
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