legislative issue – we need your voice

This week the House will hold a floor vote that will determine the fate of the 21st Century Cures Act HR 6. This historic legislation holds the potential to dramatically advance rare disease research and includes the OPEN ACT, legislation that could double the number of rare disease treatments. But we need your help to ensure the bill passes the House.

As soon as you read this, please click here to call your Member of Congress and urge them to vote YES on the 21st Century Cures Act HR 6.

Your call and your voice could help make the difference. Please take a few moments to call and take a stand for rare disease patients everywhere.

THANK YOU for your support

Hugs,
Marion