Let’s fill this one up

Viewing 9 posts - 1 through 9 (of 9 total)
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  • #37557
    raye
    Member

    Helen,

    I’ll have some time next week and I’ll put some effort into getting a figure for you for the last 17 years.

    #37556

    Thanks for that information, Rick – really interesting.

    As far as I am aware, transplantation is not considered an option here in the UK. Generally, surgery is considered the best option but, as we all know, diagnosis is so difficult and often so late, that surgery is ruled out.

    I would be really interested to know if many transplants have taken place in the USA, and what the outcomes have been.

    Love and positive thoughts.

    Helen

    #37555
    raye
    Member

    Well done Rick. That Marion sure is persuasive isn’t she? LOL Thanks to both of you to have this link available. Let me add, even if you’re just curious about transplant please feel free to ask questions. It helps to get this message out there just as much.

    Raye

    #37554
    rick-kamp
    Member

    This is a great thing! Since transplantation is still not a widely known or practiced treatment option hopefully this will draw a lot more attention to it and help keep people informed. I firmly believe this is the very best treatment option for the people that qualify for it.

    I’m happy to talk to anyone who has questions about it as I went through the protocol, but didn’t end up getting the transplant. There are others here who were able to complete the protocol and transplant who have more first hand knowledge as well. Raye has mentioned that he is very willing to talk to people about his experience with this option as well, you can look him up here by using the search function. Ashley is also very knowledgeable about the option as her Mom successfully completed the transplant protocol.

    Only about half or 2/3’s of the people who enter the protocol will be able to complete it due to disease progression/discovery of metastases or other criteria which exclude you from the protocol but for those that make it through it is generally considered the best chance at a cure.

    Best of luck to everyone who is looking for treatment options.

    Rick

    #37553
    gavin
    Moderator

    Thanks Lainy! Glad to be able to help out in any way if I can! Hope you enjoy your weekend!!

    #37552
    lainy
    Spectator

    Gavin…hey bud…Congratulations on your new “Title”!!!!!!!!!! Just noticed it. You didn’t say a word in the last e mail….little stinker! I am so happy to see this. Luv Ya

    #37551
    gavin
    Moderator

    Yep thanks Rick! The more information and subjects for everyone to discuss the better for all.

    #37550
    lainy
    Spectator

    WOW! We are so progressing! Thanks Rick.

    #3464
    marions
    Moderator

    Rick has provided us with a thread solely related to Cholangiocarcinoma transplantation. Thanks Rick. I can’t wait for this to be one of the most popular places to visit.

Viewing 9 posts - 1 through 9 (of 9 total)
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