Discussion Board Forums General Discussion Liver Infusion Pump?

Viewing 15 posts - 16 through 30 (of 107 total)
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  • #49530
    candrews
    Participant

    Hi Kris!
    Glad to hear you are home. Please keep us posted and be sure and let us know what Dr. Nancy has to say.

    Cindy

    #49529
    marions
    Moderator

    Are you still on antibiotics?

    #49528
    kris00j
    Participant

    I’m pretty sure they did. They said it wasn’t normal. Not sure what that means. I probably should have asked more but the doc showed up at 6am and I wasn’t thinking very well….

    #49527
    marions
    Moderator

    Kris…did they identify the bacteria?

    #49526
    kris00j
    Participant

    Princeton ran about 4 blood cultures. 2 thru port and 2 thru i.v.

    #49525
    marions
    Moderator

    Hi Kris….It is good to hear that you are back at home. Good luck on Monday. Kris, I am wondering: did Princeton run a blood culture?
    All my best wishes,
    Marion

    #49524
    kris00j
    Participant

    Sorry I haven’t posted. I was released on Friday from the hospital. I still had concerns because I never got control of my fever completely. I discussed it with the dr. and he said it should be okay. So I went home.
    Got home in the afternoon where the “infusion” people came to teach me how to self-administer. Since I have a port it makes it pretty easy.
    Still fighting the fever but am basically doing what we did at the hospital: take Tylenol and go to bed… so that’s what I’m doing.
    Have an appt. tomorrow in NY with my main onc (the pump lady) and I wonder how it’s going to go. Should be interesting…
    Kris

    #49523
    jim-wilde
    Member

    Kris, I hope you get a “Get Out of Jail Free” card soon and ditch the infection. That breathing thingy is a pain in the butt, but the consequences of reduced pulmonary function aren’t too nice. I got leaned on in May when I was in for a lung surgery and didn’t use that thing enough! Good luck!

    #49522
    kris00j
    Participant

    Cindy:
    There are a couple of different pumps out there. I have the Codman Pump. I THINK it’s a little larger than some of the others but it holds more cc’s.
    Either way they all work basically the same way. Good luck with you and your pump. I’m just hoping this clears up and I get to keep mine….
    Kris

    #49521
    candrews
    Participant

    Hi Kris! Still thinking about you and praying for you! Kris, I went back and looked at some of your older posts. Looks like we have the same pump. I sure am hoping that it is not the pump!
    Cindy

    #49520
    lainy
    Participant

    Hi Kris. At least the pain is leaving, the pump Lady doesn’t think that is the problem and you get Turkey anyway! Now see here Missy, this is Mama Lainy talking and you do what the Docs tell you to do or I will have to fly out there! You don’t want that! Or, on the other hand we would probably have some fun together. Take care and I hope you can go home tomorrow!

    #49519
    kris00j
    Participant

    Happy Thanksgiving everyone from Princeton Hospital. I’m still here. The pain has dissipated greatly, thank God. The Dr.s are still torn about whether the pump is infected or not and whether that means removal of the pump or not. But now they are yelling at me about the pneumonia and not using my breathing thing and getting up an walking more. So today while I wait for our wonderful (ha!) Thanksgiving Dinner I guess I’ll try to be a “better” patient.
    I called Dr. Kemeny’s office to make sure they were being updated on the tests, etc. and her nurse practitioner said they don’t believe it’s the pump. Of course, she doesn’t want it to be the pump either, as it’s “her” pump. She designed this one so if it goes bad I’m sure it bothers her a little more than other drs. I won’t say personal, since she doesn’t get that way, but she has the best professional reputation.
    So I wait. I’m hoping to go home tomorrow where they will teach me to do home infusion i.v. antibiotics. Maybe???

    #49518
    marions
    Moderator

    Kris…..I want to believe and will hold on to the thought that even if….it is the pump causing the problem…. then that other options are available to you.
    Wherever you will be either NJ or NJ…..a tidal wave of positive thoughts are heading your way.
    Hugs
    Marion

    #49517
    candrews
    Participant

    I will continue to pray for you Kris!

    Cindy

    #49516
    lainy
    Participant

    Kris, please try to stay hopeful and let us know when the NY trip is taking place.
    Wish I could tell you something more but the pain has to go as it zaps too much good energy. Thinking of you often.

    You never know how strong you are until “strong” is the only choice you have!

Viewing 15 posts - 16 through 30 (of 107 total)
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