Long overdue update…

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  • #54800
    marions
    Moderator

    Jamie…what a beautiful name for a precious little granddaughter that is! Stay strong, Jamie. Little Lucie will make it happen.
    Hugs
    Marion

    #54795
    kathyb
    Member

    Hi Jamie,
    Good to hear from you. I sent you an email on the board, but the first try failed to go through. Let me know if you didn’t get my second try.
    God bless you,
    Kathy

    #54799
    jamie-d
    Member

    Hi Marion,
    My grandaughter is almost 8 months old now. Her name is Luciana, but we call her Lucy. She is the most precious gift. She gives me even more reason to fight for more time. I would love to live long enough for her to have memories of me. Thanks for your response. God Bless,
    Jamie

    #54798
    marions
    Moderator

    Jamie..I am sorry to hear of the latest news. Like you I am holding out hope for the Gemzar to come through for you again. And, that would allow you to have the much wished for Christmas with your little granddaughter. Jamie, you have kept this little secret from us. How old is she and what is her name?
    Know that I will have a special wish in my heart for you tomorrow.
    All my best,
    Marion

    #54797
    jamie-d
    Member

    Thank you so much Lainy for your reply and kind words. I wish everyone a very Happy and Blessed Thanksgiving. I was unable to get chemo today because of my blood counts. Sounds like the Cisplatin is not going to be an option anytime soon. I am frustrated. Praying that the Gemcitabine on its own will do some good.
    Happy Thanksgiving again and God Bless,
    Jamie D

    #54796
    lainy
    Member

    Jamie, Jamie, Jamie…it’s so good to see you again! Although I wish your news would have been different. Ah, the old chemo game, to chemo or not to chemo. Guess my decision would be based on my experience with Teddy which was his asking the ONC what to expect with and without the Chemo. As for ‘feeling like giving up the fight’ I’m not so sure Lisa, Kris and Rick would agree just yet. Christmas with Granddaughter priceless! Will you all be together for Thanksgiving? Jamie try to be strong and realistically optimistic and please keep us posted on how you are doing, you know we care!

    I asked for strength.
    God gave me difficulties to make me strong.
    I asked for wisdom.
    God gave me problems to solve.
    I asked for prosperity.
    God gave me brawn and brain to work.
    I asked for courage.
    God gave me dangers to overcome.
    I asked for patience.
    God placed me in situations where I was forced to wait.
    I asked for love.
    God gave me troubled people to help.
    I asked for favors.
    God gave me opportunities.
    I received nothing I wanted.
    I received everything I needed.
    Today is the first day of the rest of your life!

    #5943
    jamie-d
    Member

    Hi all,
    Sorry I havent been on as much lately but have been having a hard time with the loss of so many good people on here lately, Kris, Rick and Lisa and others have hit me hard. Makes me wonder why I am still here and also makes me lose a little bit of my fight. After Xeloda failed and ended up putting me in the hospital for diarrhea in Dec, I started on Folfox in Jan. Wasn’t too bad to take and had some good results first 2 scans. Unforunately the scan in Sept showed growth and the Dr changed me to Irinoteccan. It gave me diarrhea, stomach cramping/pain and more nausea than ever before. Just had 1st scan last week after starting it and everything has grown and also new tumors again. Not good news. Lost my hair for nothing too :) The Dr is putting me back on Gemcitabine (was on it originally with Xeloda with good results and then a year after my resection (2009) when the cancer spread to my lungs with stable to slow growth while on it). He talked about adding Cisplatin but is concerned that since I am on a downward spiral that it could hasten it. Talked me out of starting it this week and we will discuss it in 2 weeks when I have my 3rd Gemzar infusion. Not sure what to do about it at this point. If this is my last Christmas (first with my grandaughter) I don’t want to be sick or in the hospital. My platelets have remaining at 80 or below for months now and red count is trending down to below normal as well as my white count. I don’t want to give up, but don’t want to end up doing more harm than good and losing precious time with my family. So that’s kind of a long update on what’s been going on this year with me. I so appreciate this site. It is so full of so many good people. I have checked in, but as I said not as often because it’s been hard. Hopefully, I’ll get my fight back and will be up to getting back on more. God Bless you all,
    Jamie

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