Look for treatment options
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My father is still bile leaking. It has been 1 month, he hasn’t recovered yet becauseof that bile leak. When the J-P drain is set to suction, bile come out a lot, 60 ml per hour, when it’s set to gravity, bile come out not much. Don’t know which way is good , suction or gravity. He is too weak to receive chemo. We will see Dr. Kelly in UCSF mid of May, also, we will see UC David Oncologist on May 4. Hope they can help my father to solve the bile leaking problem. We all worry about the cancer already spreaded out through the bile leak, because the hole is located at the liver duct where the cancer is.
Debbie, thank you so much for your valuable advices. Yes, I did send a consultation request to UCSF GI Oncology. I was told that Dr. Kate Kelly’s appointment was already scheduled to mid of May. I will schedule an appointment with her. I am really encouraged by your sharing. Will try my best to help my dad fight with CC. Thanks again. Will post updates.
DaiWelcome to our forum, Dai. I am sorry to read that your dad has CC and had an aborted attempt at resection with complications. My best advice to you, based on our personal experience with UCSF, is to request a consultation with Dr. R. Kate Kelley, Medical Oncologist, at UCSF. Her telephone # is 415 – 353-9888. I would suggest providing her with the pertinent details of your dad’s situation and ask her how best to proceed with treatment.
Dr. Kelley is brilliant, kind and knows how to get to the heart of issues and get treatment in place. She also works with a world class team of multidisciplinary doctors that work closely together to best address the needs of patients. They see quite a few CC patients. We live in the east bay area, and do not regret for a moment the hour and a half drive we made many times for my husband’s consultations and treatment. We were told my husband’s CC was not resectable after a failed resection attempt by a big HMO in our area. We went to Dr. Kelley seeking her opinion on the best treatment for him based on her involvement in current research and trials. In my husband’s case, the entire UCSF team met and determined surgery was possible. If not that, next best would have been a combination of Gem/Cis followed by SBRT, with more options behind that. My point is that you are within driving distance of a world class CC specialist and there are options that can be effective, so I hope you take this advice or go to a similar top center specializing is CC. The other medical centers simply don’t have the expertise to handle these cases well. All the best you you and your dad.
debbieMy father is 79 years old. He was diagnosed CC in the mid of March, 2015. The doctor suggested surgery. On 3/30/15 he had a surgery. Unfortunately, the tumor was not able to be removed because the tumor extended from the common bile duct into the both left and right liver ducts. The surgeon removed his gallbladder only. 8 days after the surgery, the pain around the surgical area increased, and skin rashes showed up in front of the upper body. Two days later, doctors found out infections and bile leak so he received a catheter drainage procedure. Now I was told that the stent (a plastic tube) done by the ERCP procedure 4 weeks ago has to be replaced, and my dad’s surgery area may be open again to treat the bile leak. I was so surprised that the surgeon didn’t replace the plastic tube with a longer lasting one during the surgery. We are so disappoint with the surgery. Currently, my father is too weak to receive either procedure or another surgery. We are thinking to postpone the stents changing procedure until he recovers better, and let him live with the drain for a week or 2. We don’t know if it’s a correct decision. We did talk to his Oncologist. He will treat my dad with Gem 1000mg/m2 with Cisplatin 20mg/m2. The chemo isn’t to be given until he recover well from the surgery. At this age, we doubt that my dad can tolerate chemo. Are there any better treatment (such as clinical trial which my dad is able to join) for weak and elder person like my dad?
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