July 15, 2016 at 10:55 pm #88643marionsModerator
This trial is closed, but the study is ongoing:
https://clinicaltrials.gov/ct2/show/NCT01828034September 5, 2015 at 2:45 am #88642mbachiniModerator
Congratulations on 20% shrinkage! That is awesome news, keep up the good work!! So happy to hear positive results and thank you so much for participating in this trial.
MelindaSeptember 2, 2015 at 12:48 am #88641iowagirlMember
Diane…way to ace the scan exam!!! Seriously, 20% shrinkage is a really great response for any treatment of this cancer and in a short time. Good luck in October……for another 20%+ gone as well.
Julie T.September 2, 2015 at 12:06 am #88640
As I stated on the other discussion board. I had very good results after my scan on Aug 26th, My Dr told me that the CT showed a 20% shrinkage of the tumor. She was very pleased with my results. I had only started chemo at the end of June and I am still on the clinical trial MEK 162.
I see Dr Lowery at MSK in NYC.
Wishing all my fellow CC people good luck with their results. My next scan will be at the end of OCT.
_DianeJuly 2, 2015 at 5:47 pm #88639gavinModerator
Hoping as well Diane that the numbers do stay up, fingers are crossed for you!
GavinJuly 2, 2015 at 3:18 pm #88638
thanks , I guess after my next CT in Aug we’ll see how things are going. My bloodwork was good yesterday but that was before 2nd round of chemo…hope the numbers stay goodJune 30, 2015 at 5:50 pm #88637gavinModerator
Many thanks for all of this info and I look forward to hearing how everything goes with the trial. Please keep us updated on how things go and I wish you every success with the trial, fingers are crossed for you!
GavinJune 30, 2015 at 4:40 pm #88636marionsModerator
This is the study identifier:
https://clinicaltrials.gov/ct2/show/NCT01828034June 30, 2015 at 4:24 pm #11383
HI guys, I just stated on this Clinical trial on Jun 16. MEK 162 Inhibitor phase 2, along with Cisplatin and Gemcibine I have Bile Duct Cancer, I have cancer lesions on my liver and a spot on my spine so I’m stage IV. I didn’t go to the Dr due to being ill. I see a hematologist/oncologist every three months due to a high platelet problem. He noticed my liver enzymes were a little elevated and checked my blood a couple of more times to see if it was just a fluke. Then sent me for an ultra sound thinking maybe I had gall stones and they were irritating my liver. Nope, not the case, there was a spot on my liver, then had a CT, that appeared to show the cancer and had me have a liver biopsy to confirm that it was cancer. The PET scan showed it was in other places. I still look fine, people can’t believe I have cancer. I If I wasn’t going to a DR, I’d be at my sleep away camp where I have worked for the past 7 summers. Now I have to stay home and go thru this.
Anyone else doing this trial in NYC at MSK? Since this is still new to me , not sure what side effects are happening. I go for my second round of chemo tomorrow. I didn’t have a port put in but I’m thinking after tomorrow I will have that done. The Gem hurts/burns going in, not very pleasant. I just recently noticed that my scalp hurts. Anyone else have this issue.
I’m not a great writer so I apologize if I’m all over the place. BTW I am 52years old and have not been sick in years. Have had perfect attendance or would just take a day off here or there just for me.
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