Met with the Dr…

Discussion Board Forums Clinical Trials Met with the Dr…

Viewing 15 posts - 1 through 15 (of 15 total)
  • Author
    Posts
  • #48868
    marions
    Moderator

    Jooolz…No, you are not silly. Unfortunately mistakes do happen. Stay on top of things and possibly have someone assist you with this. Take notes of all conversations, the date, the name of the person and phone numbers.
    Be prepared to encounter similar occasions.
    All my best wishes,
    Marion

    #48867
    lainy
    Spectator

    Joolz, sadly its the way so much rolls today. No one wants to do their job and service is out the window! I think a lot of office staff no longer feels pride in what they do. It’s a good thing we know how to tell them!

    #48866
    joolz822
    Member

    If this is a harbinger of how things are going to go… the Study Coordinator called me today and said she can’t get my CT results because they weren’t ordered by an on-staff physician. Oh, I said, it was most certainly was!

    Am I just being silly? Is this just a fluke or the way things are going to be?

    #48865
    marions
    Moderator

    Joolz….Ha, let’s work on it; a super yummy barium.
    My fingers are crossed for a super CT result.
    All my best wishes,
    Marion

    #48864
    joolz822
    Member

    If anyone can change the formula for barium and make it palatable, they’d make a mint.

    So the CT scan was done today. No biggie except for the barium. I imagine I’ll hear results from this and my blood tests in a few days.

    #48863
    nur1954
    Spectator

    Joolz – Double ugghhhh!!!

    #48862
    marions
    Moderator

    Joolz…Ugghh…I hear you. Unfortunately, barium has never been touted to be of culinary value. Looking at the positive though, your next meal will be a most pleasurable experience.
    Good luck, tomorrow. You are more than halfway there.
    All my best wishes,
    Marion

    #48861
    joolz822
    Member

    Had to drink barium for tomorrow’s CT scan. Yuck. There’s more for tomorrow.

    #48860
    joolz822
    Member
    Lainy wrote:
    Joolz, best of luck on your big rehearsal the beginning of April. April means Spring and Spring means new beginnings and that is what I am hoping for you!

    Yep. Spring is for all new things.

    #48859
    joolz822
    Member
    marions wrote:
    Joolz….good luck and regarding Xeloda it is a drug commonly used for this cancer. You know how to find previous postings? Go to top, google function, type in Xeloda….and voila, tons of postings will appear.
    All my best wishes,
    Marion

    I looked it up on the Net and found a lot of information already. I keep forgetting this board has a search function!

    #48858
    jathy1125
    Spectator

    Joolz- I took Xeloda for 5 months while waiting for transplant. I took 8 pills twice a day can’t remember mg. I had no major side effects. Drug company nurse called once a week to check on me.Good luck.
    Lots of prayers-Cathy

    #48857
    marions
    Moderator

    Joolz….good luck and regarding Xeloda it is a drug commonly used for this cancer. You know how to find previous postings? Go to top, google function, type in Xeloda….and voila, tons of postings will appear.
    All my best wishes,
    Marion

    #48856
    lainy
    Spectator

    Joolz, best of luck on your big rehearsal the beginning of April. April means Spring and Spring means new beginnings and that is what I am hoping for you!

    #48855
    slittle1127
    Member

    Looking forward to the best results for you. Keep us posted.

    #4900
    joolz822
    Member

    who will be injecting the radioactive beads into me. He came across as competent but not arrogant. If I’m accepted into the study (still waiting on test results and I still have to get a CT scan) he’ll do two takes. The first is a trial run and the second is the real thing.

    This is the chemo drug I’ll be taking:

    http://www.rxlist.com/xeloda-drug.htm

    If all goes well, the trial run will be on either April 1 or 4 and the actual procedure on April 14.

    I saw a scan from my January MRI. No wonder I have pain. Two of the liver tumors are huge and press against my abdomen. I saw a lot of little tumors too.

Viewing 15 posts - 1 through 15 (of 15 total)
  • The forum ‘Clinical Trials’ is closed to new topics and replies.