methadone
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Jen, I am so sorry to hear about Dad’s scan results. It reminds me of how Teddy’s journey went. I think a whine & wine program is certainly in order and what ever works is a good way to go. I know you already know that comfort is the key now and I am wishing for the comfort for Dad and praying for the strength for your family!
Jen:
There are days when we need a good cry and a glass of wine. You have earned it so go ahead and indulge – you will feel better afterwards!
Hopefully they will get your dad’s pain under control. I know my husband Tom hates taking his pain medication but I insist so that he stays on ‘top’ of the pain before it gets unbearable! Those men – I believe that they think they are showing a weakness if they take pain meds!
Go with God…and I’m part of that Tidal wave of love and support!!!
Margaret
Well we got the CT results, and it’s not good news. The cancer has spread throughout Dad’s peritoneum (lining of the stomach), and possibly other areas as well… I’m not too sure. He also does have some ascites, but not enough to be drained. This has all happened since his CT in February when there was no change, so it’s obviously spreading pretty quickly now. Our only goal is to keep him comfortable, which is proving to be more difficult then we would like.
Every time we get news, I think I’m going to be okay. I actually WAS okay when I heard, since realistically we know that this would be the time we wouldn’t get good news. I WAS okay until I got home and realized that my husband was out for a few hours, my baby is in bed, and even the dog isn’t here… it’s quiet, I’m sad, and I am having a good cry and a glass of wine. The cry (and wine) will do me good, and then I’ll get back to being strong for Dad. I hate this.
Jen
Thanks everyone… from reading the other posts, it sounds like the methadone should hopefully help. It may make him sleep more (which doesn’t seem possible since he’s rarely up as it is), but at least if he’s asleep, he’s not hurting.
Lainy – he has a bed waiting for him. He is getting his CT right now, and will be moved right up to the unit from there. He had another horrible night at home, which must be so exhausting not only for him, but for Mom and my brother Chad (who moved back home to help out — so thankful for that, but I can’t imagine it’s easy for him either). Right now our one and only focus is to get the pain under control again. It really is the most helpless feeling in the world, but we are all managing to be strong and keep smiles on our faces for Dad…. around him anyway
I will be going up to see him after work tonight, and am hoping that they are well on the way to making him comfortable by then. Thank you all for the thoughts and prayers – thinking of you all as well.
Jen
HAPPY BIRTHDAY Jen and sending a great big Birthday hug your way!
I do have tears this morning after reading your post because it so reminds me of Teddy. He also had the lumps all over. Teddy was on 350gm of Morphine 2 x day with breakthrough every hour of 175gm. When they switched to Fentanyl it didn’t work as well, but some people like it better. I guess it depends on the person. I am just praying they get the pain under control. What bothers me is the longer dad has to wait the harder it gets to control it and he is using up good energy on pain. I know how hard it is to watch him and you feel so helpless. I am crossing everyting I own for dad to get relief today! I just want to say for others that not all CC patients have this kind of pain, everyone is different.Jen, So sorry to hear your dad is in so much pain. I think this is all our worst fear; that our loved ones will be in pain. I have a good friend who has had chronic pain for years and she is now on methadone and has never felt better. I pray your dad gets the same result!
Happy Birthday to you! Doug doubled you today! I relayed your birthday wishes to him. Doug had a wonderful birthday. We went to a local pub with our best friends and kids and had a great dinner. Tamia made Doug a delicious chocolate cake. Doug has been sleeping a lot lately and I was afraid he would not be up for the celebration. Well, he rose to the occasion and had a great time! We stayed until the end of the 3rd period of the hockey game and made it home to see the Canucks win in overtime! Doug is a big Canuck fan. Now we look forward to the wedding on Saturday. Doug wonders what we are going to do after that! It will be my time to rest I tell him – lol. Like your dad, Doug is my hero and he never ceases to amaze me with what he has to go through. I love him more everyday.
I try not to think of what lies ahead and enjoy what I have today.
Again I pray that they find relief for your dad’s pain so he can enjoy his life again. Tell him we are thinking of him in Revelstoke. Hugs. NancyHi Jennifer, so sorry to hear of all the pain. We are also experiencing EXTREME pain with my mother in law. She is on methadone and morphine. They doubled her dose of everything and added more morphine yester. The methadone has worked well
Jen….I am sorry to hear about the recent developments. Yes, methadone has been used by some of our members. Here are some previous links:
http://www.cholangiocarcinoma.org/punbb/viewtopic.php?pid=43587
http://www.cholangiocarcinoma.org/punbb/viewtopic.php?id=2387
http://www.cholangiocarcinoma.org/punbb/viewtopic.php?pid=44526
http://www.cholangiocarcinoma.org/punbb/viewtopic.php?id=5901
http://www.cholangiocarcinoma.org/punbb/viewtopic.php?id=2360
I am sending all my good wishes and for the pain to be controlled immediately.
Hugs
MarionDear Jen,
Firstly Happy Birthday!! xxx
I really hope they sort your Dads pain relief out and a bed becomes available today. I’m hoping that the CT scan also helps answer some questions. I can’t help on the methadone question as Dad remained pain free but if you type it in the search engine it might bring up some previous questions about it.
I know watching your Dad go through this is heartbreaking for you and your family, I am sending lots of love and prayers your way.
Andrea xx
Hi Everyone,
We are just curious if anyone else has been put on methadone for pain? Dad’s pain is becoming uncontrollable again, and we are actually waiting for a bed at the hospital for him (we’ve been waiting a week)… sounds like today will hopefully be the day. He refuses to take a bed from someone else, and doesn’t want to be on an active unit – he is only comfortable in the palliative area, and is willing to wait.He is on the fentanyl patch and taking hydromorph for breakthrough. Problem is, his back is an absolute mess from the patches, and even with medication, the itching is too much for him. There isn’t a spot on his back left that isn’t absolutely raw. Besides that, I believe fentanyl only works when the person using it has some muscle, and Dad certainly doesn’t have any of that. He has been taking WAY more breakthrough (it went from about 24mg per day to having to take 172mg yesterday) – it’s just so high, and he’s still in agony.
They have decided to put him on methadone, and feel it will help control the pain better. We are sure hoping he gets in today so this can be dealt with and they can get on top of his pain again. He also has lumps all along the bottom of his back that you can feel when rubbing his back, and having a lot more pain very low in his abdomin, as well as pain when he urinates (no bladder infection)… spread to the kidneys? We haven’t yet figured out if he has ascites either, but has a CT tomorrow, so I guess whether he’s at the hospital or home, we will find out more soon.
This is all so awful. I hate what this is doing to my poor Dad.
On a good note, happy 30th birthday to me… so glad Dad is here for another milestone, whether he remembers what the day is or not
! A happy, happy 60th birthday to Doug (Nancy246’s husband) as well. I hope he is having a fantastic day Nancy!!Jen
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