Alice-I second Jeff’s opinion. You need to talking to the doctors before April and get options for treatment. Sometimes you have to be a pushy patient advocate to get care. It shouldn’t be that way but we have found that to be true in every step of this horrible journey.
Alice… If you or the doctors did not notice the tumor on the head of John’s pancreas then you certainly should not be told all is stable. I would at the first chance you get be talking with doctor or comparing ct scans. A 5.6 CM mass on the head of the pancreas is not something to be taken lightly. Determination of wheter it is resectable or not is what I would be asking about. I don’t mean to be so blunt but if that tumor /mass was not there previously then maybe a second look and different approach of treatment is needed sooner than later.
John had a ct scan on 2/26. Got the results last week it said all was stable. He is now on a month long break from chemo. We don’t go back to the doctor til April 2. However, we had not noticed on the previous scans a 5.6 cm mass on the head of the pancreas. Has anyone else had mets to the pancreas? What type of problems arise from tumors on the pancreas? Also, John is diabetic. His diabetes is controled by pills. He’s lost about 20 pounds in the last two months and is now having trouble with low sugar attacks. He has cut back on his diabetes meds.
a few days before his ct scan John had 3 liters of fluid drained from his abdomen. Tests were run and the doctor said the fluid had suspicious cells. What does that mean? How good can the good news be if its off set by such bad news. I am so thankful for a place to ask questions and try to make sense of all this mess.