Moira and Cholangitis
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Thanks so much for your kind words, thoughts and prayers. That means so much to us. We’ve been sitting outside in the sun over the last few days which we have both enjoyed. I’ll let you know how Moira gets on. SorryI’ve not participated in other discussions but as you can imagine time seems to be at a premium right now. Simon x
I’m sorry to hear about Moira Simon. I know that this is such a tough time for you both, but please remember that we are all here for you. Thinking of you both right now.
My best wishes to you and Moira,
Gavin
Im so sorry to hear Simon. Just have wonderful quality time with Moira. Just said a prayer for you two. Just keep everything One Day at a Time. There will always be hope. Please take care
TeresaDear Simon, I am so sorry about Moira not working but better she uses her energy for other good things. Teddy used to call our time together our Honeymoon. It is good that the side effects she had have stopped. Can you ask for another Nurse instead of the one you got? My best to the 2 of you!
Hi Simon, Sorry to read that Moira had to give up work. I know that it was a good release for her. Probably, the only time when cc was not occupying her mind and life.
I am hoping that she is not in any pain and the nausea, shivering, and swelling has dissipated. My only advice, enjoy each day together and find laughter in even the smallest things. Sending big hugs. NancyThankyou all for your support, advice and kind words. Moira is at home, and has finally had to forget even part time working (which was a struggle to get Moira to do in the first place) and is now seeking medical retirement. She uses the saliva spray, which helps, but is v tired and not much energy at all. She has to build up stamina to go anywhere. Moira has contact with a Mac nurse, but the support Moira gets from her is not as good as I would have liked for Moira. Moira does though get a lot of help from her very good Dr at our local Hospice – they are excellent there for her. It is a struggle, but we are carrying on regardless – what else is there? Thanks again everyone. Simon
Simon, take care of your self as well as Moira. You are doing a great job and she feels your support. Love each other and make memories. Thinking of You.
Thanks so much for your help Lainy & Marion. I will take all your advice. Moira is slowing down a lot, her breathing now is much quicker and her mobility is not brilliant, but we’re battling on – made all the more do-able knowing you guys are there. Thanks so much for your help and good wishes. All best wishes. Simon
Simon,
I forgot to say as well that Moira could be refered to Macmillan to get the services of their nurses by a district nurse as well.
Gavin
Hi Simon,
I just wanted to chime in here and join in in what Marion and Lainy have said to you and let you know that I am thinking of both you and Moira.
Also, what Marion says about the artificial saliva is something that my dad got when he was in hospice when he had his dry mouth. It helped him a lot and he got a lot of relief through using that and here is a link that has more info on this and dry mouth –
As Moira is now at home with you, does she get any help from a Macmillan Nurse? My dad had a Mac Nurse and she was a godsend to us and I am sure that one would be of great help here for Moira. In order to get the services from a Mac nurse Moira would need to be refered to Macmillan from her GP or hospital doc, onc etc and I know that they would do this for you immediately. I really can’t stress enough how much good and help dad’s Mac nurse was for him and one I feel would certainly help Moira in many ways right now.
My thoughts are with you right now and please know that we are here for you.
Best wishes,
Gavin
Simon, cannot say anymore than Marion has but just wanted to let you know I hope for the best for Moira and that this turns around quickly. Sending good thoughts your way!
Simon….I am sure that you already know this:
Elevating feet will help reduce swelling.
Abdominal fluids can be drained in most circumstances.
Here are some of the recommendations for dry mouth. Sip of water every few minutes, try very sweet or tart foods and beverages (such as lemonade: these foods may help your mouth make more salivia. (Do not try this if you have a tender mouth or sore throat and the sweet or tart foods make it worse.) Suck on hard candy or popsicles or chew gum. Keep lips moist with lip salves. If dry mouth is severe, ask the doctor about products that coat, protect, and moisten the mouth and throat. These are sometimes called “artificial salivia”.
Simon, I am also wondering about the McMillan nurses? Are they involved.
Please know that I am thinking of you and Moira.
Hugs,
MarionHi Marion. Sorry ages replying, rather busy at the moment. Moira was in there for a while because yes her temp was sky high, 37.8 at one point. Also she was very tired not eating much, feeling very cold and shivering with feeling cold sand her legs were very swollen. She was also extremely constipated. They took her in, and it took them over a week to get her bowels moving, by which time she was in quite a lot of pain and very nauseous. They tried all sorts of different drugs. Moira is now at home but very very tired. Her tummy is distended and she is not eating a great deal – her mouth is constantly extremely dry. Her mobility is poor an both her legs are very swollen. I’m not sure what stage of the illness we’re at but it’s becoming harder and harder for Moira to cope. As ever I am supporting her through all of this and have fantastic support from my employer, family and friends. Best Wishes. Simon
Simon….I am sorry to hear of the latest developments. You are mentioning that Moira has been in the hospital for a few weeks now and I am wondering:
Did Moira have an elevated temperature when admitted and is she now back to normal?
Is she still nauseous?
Is she able to digest food?
What is the result of her blood test, scan, or MRI? Sorry for appearing nosy however; I am trying to understand why Moira needed this extended hospital stay.
I am sending all my best wishes your way and please, keep us posted.
Hugs,
Marion
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