Moms CT results

Susan, just want to say that Teddy never had Chemo as 5 Docs said no. BUT he did have radiation for CYber Knife to bring the tumor down. He had 25 “hits” and did quite well at 75 years old. Only got real tired the last 2 weeks and then started to gain his strength back about a week after he was finished. I do know its a personal decision like to chemo or not. We were given the final prognosis that he had maybe 6 months but that the ONC would be willing to give Palliative chemo, Teddy asked, “How much time will it buy me?”. The ONC said maybe a month – 2. After 2 days of weighing it all he decided for quality over quantity. This is a question you may want to ask. I hope all of our experiences help but it is up to Mom while she can help make hr own decisions. Susan, here we spent a Saturday together, next time lunch and shopping, yes?

Hang in there, Susan. So difficult to get scary news. Chemo didn’t work for my sister so Drs switched gears to a different tx. Though its very disappointing news, Once you have the PET results and a new plan, you’ll feel better. It is hard to be away from loved ones during a time like this. Letters, cards, calls and emails help bridge the gap.
Willow

Ah, I understand, now. Well, that would add to your nervousness. Unfortunately it will be a long ardous road no matter what so I hope you can cut yourself some slack. Not sure this will help or not. When Teddy was sick, Mama Mia was the rage. I would get in the car drive around for about 15 minutes, put my CD of Mama Mia on and sing so loud I was sure they heard me in the next County. Went home renewed as I love Abba! What I am trying to say is, work and Mom, work and Mom…some kind of release, no matter how small may help calm the nerves. I know you will advise us of the scan results as we like to be in your loop as well!

Susan, when your hands are tied, try to take it one day at a time. You need to use the recess time to regain mental and physical strength as being a Caretaker is the most draining job in the world! Be kind to the Caretaker. One reason I love MDAnderson is I get my own results the very next day. I guss the various places have their own rules. The Chemo may be working since there has been no change and we use that lovely word stable! The ONC can always switch up Chemos. Probably waiting for this next PET. Is Mom up for a nice lunch out? Something different and different atmosphere.

Dear Susan. My husband had a return of CC about 3 years after his Whipple. It was in the Omentum area, actually where the Duodenum used to be. It was 7CM and must be below that for Cyber Knife. He had 25 radiation treatments and that brought it down below 6CM and had a successful CK treatment. The tumor must be below the 7 and not have Metasisised to make it eligible for CK. Best of luck on this and I would def ask the ONC about it. I am just guessing here but CK could be an option.