Moms visit today
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Don’t get discouraged! The tumor is still small. I’ve had Stage IV for over a year at least and I’m still going strong. Every case is different. Pray and don’t give up hope.
I would like any recommendations for physicans in Florida that have dealt with this. I liked Dr. Springett but from what he said he seemed like this combo of chemo was her only choice and if that didnt work then there was nothing else. That scared me because I never want to give up or have her give up. The other thing that scared us was that he used numbers and percentages and my mom cannot hear things like that. I believe that no one is a number and no one should be looked at like a statistic. Ive read many stories in which people had no treatment and survived longer then expected. I expressed this in the examination room before he could continue with his speech on percentages. He got the point and stopped talking about it. immediately and was great from that point. Thank you all so much and please anyone with recomendations for Florida doctors that would deal with this type of cancer would be great. In the meantime we will start chemo on Dec 31st with hopes of good results.
I agree with Lainy in that a plan has been contemplated, and that indeed is good news. I assume that Dr. Springett was talking about the Gemzar – Cisplatin combination. If you are up to it you may use the search function (just enter the two words.) Please, remember to have copies of all reports, scans, blood tests, etc. on hand in order to forward these to the Mayo Clinic or, two other centers familiar with CC. If you need more recommendations please, feel free to put it out on the board because, the members have always been helpful with passing on the names of their physicians. The weight loss is synominus with this cancer and it is being addressed in many of our postings. High caloric foods were one of our choices that is of course, if your Mom is able to digest it. We just played around with it. My husband did not have any appetite for anything so I just kept enticing him with things he liked in the past. Sometimes it worked better than other times.
Hang in there. There is that saying: First we cry – then we fight. Your Mom is ready and your support is invaluable to her. We are here to help you both.
Best of wishes,
MarionSo sorry to hear about your mom. The better news is that your doctor has a game plan. You will see that having a game plan gives hope and now you get on with the plan and rev up your fight. I also think it is a splendid idea to get 1 more opinion. If your mom has the fighting spirit you have no choice but to join her. Please keep us posted on her progress.
Hi. Well we took mom to Moffitt in Florida where we met with Dr. Springett. He was highly recommended in treating this type of cancer. When we sat with him he was very formal, and told us exactly what was happening. Stage 4 Bile Duct Cancer (cancer had spread to both sides of the liver). He recommended chemo (combination of Gezmer and something else that starts with a C) they will do it once every two weeks and then scans to see whats happening. The klatskin tumor was 1.2 c and the growth on the liver was 1 to 1.2 c. very small but still not the best news to hear. Once he told us what is was and the stage, he gave us the game plan for treatment and told us about success stories that he had. My mom cryed at first but then told me she was going to fight this with everything she has and that its in Gods hands.
Mom is down from 139 in October to 116 pounds. Goal is to get her weight up alittle and get her strong for chemo. I am still going to get another opnion from Mayo as nothing has spread beyond the liver.
Im upset and disapointed. Feel like its been nothing but bad news since November and I know we have a tough rough ahead of us. Im hoping for the best and will try and just be there for her and get her through this, whatever the outcome. Thanks for all the postings as I have learned so much from this website. I will keep everyone updated on whats happening with mom.
Thanks again
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