Moving ahead…
- This topic has 16 replies, 8 voices, and was last updated 14 years, 9 months ago by
.
-
Posts
-
Tom went to his followup appointment yesterday after being hospitalized two weeks ago. His liver enzymes are just a little high after being SKY high while battling massive infection. His bili is great- 1.3, but his CA19 has jumped clear up to 2246. They’re telling him he has pre-cirrhosis so I’m hoping that is what is causing this huge jump. We’re going to discuss a plan tomorrow but he has to “get rid” of the prostate cancer first. Best wishes to all- I saw a robin today. Spring is right around the corner. Mary
Mary,
I’m cheering along with you. Who would ever have thought that white eyeballs could make you so happy!
Darla
His eyeballs are white today- yay!! That’s the best way for me to judge his condition. He always looks a bit tan, even this time of year. One of our friends said he was the healthiest sick person he’s ever known. Healthy as can be one day and in the hospital the next. Oh what fun all of this is. We were all ready to leave yesterday, he was getting in the wheelchair and one of his Drs came in and said he needed one more dose of a potent antibiotic before he left. Of course hey had pulled his IV’s so they had to put a new one in. It took them 2 hours, even using their fancy, high tech ultrasound machine to get a new one started- for a 20 minute infusion! He has no veins left. I can’t imagine what all of the patients on here go through. You are some of the toughest, bravest people in the world!! Mary
Mary,
I too am hoping things will work out for Tom and you. Hopefully the diet will be helpful. Take care of Tom and also yourself.
Thinking Of You,
Darla
Joyce,
I just devised my own “optimum” liver health diet. Basically a vegetarian diet, with very little meat , little dairy, no cheese because he can’t handle it, little sugar, no fats, fresh carrot juice, etc. Just whatever I read that helped a stressed out liver- and his is stressed! They are saying he is in pre-cirrhosis because of all the scarring. He is home today, but it is unbelievable how sickly he is compared to a week ago. MaryMary,
We are all reading this and pulling for you and Tom. Keep up the good fight. I had a book – when Butch was ill – called something like “the clean liver diet” – is this the one you mean? I recall it was very helpful to us – written by a lady Doctor.Joyce
Marion,
I believe the rising tumor markers are from inflammation, infection and slight obstruction. He has a stent in now, at least temporarily, so we will see if they go down once this infection is cleared up. They will probably leave it in for a month or two and if the markers go down then that will prove that it is not from recurrrence. Like I said, I don’t believe he has any recurrence regardless of whether the Drs. feel the same way. Until they see something on a scan, I think he is doing fine. I want them to remove the stent, then no more ERCPs. His liver needs a break! Thanks for your good wishes. MaryMary, while the news is not all what you wanted at least now you can have a game plan and that always seems to bring some relief. You both seem to have such a good attitude and that along with watching Tom’s diet, you have already come out winners!
Mary…..I have much hope for the prostrate cancer to be treated successfully and I am thrilled that the cancer has not returned. I am wondering whether his rising tumor markers had been related to the infection developing?
All in all, you have good news and with the diet and only an occasional cheat of chips and candy, Tom has a great outlook.
This is the news all of us want to hear.
Best wishes,
MarionOkay, this always happens when I post something on here. It changes hourly. No cancer, biopsies were negative and dilation above original tumor site was infection( pus, yuck!). This is what I am sure of anyway, whether DRs. are on board or not. As far as transplant, unless an exception is made Tom has to go three years after treatment for prostate cancer with no recurrence before he can be put on the “list”. So, back to the “optimum” liver health diet I had him on after he was nuked three+ years ago. It worked then, it can work now. At least this is a wake-up call for him, he has to behave better and watch his diet! No more sneaking chips and candy! Ha!
Kris,
I’m sending you lots of good vibes and love to help fill your buckets of hope!! Take care of yourself. We all feel your anticipation and probably dread at the same time.
I promised myself I would never ride a rollercoaster again after my last ride on the Magnum (Cedar Point), but the last three years and now 8 months have been a continuous one.
Best wishes to all, MaryHi Mary,
I am sorry to hear what you and Tom are dealing with right now. Yes you do have to be strong, even though sometimes it is hard to do, and as you say, there is always hope. I will keep everything crossed and hope for some good news for you and Tom.
My best wishes to you both,
Gavin
Mary,
I cant imagine the roller coaster you just got on. Please keep us informed. I am praying that the cancer has not come back and transplation is on. Hope Toms feels better soon.Kris
- The forum ‘General Discussion’ is closed to new topics and replies.