Mr Hodg with the monster CC

Scott:

As for your doc’s telling you that you have 4 to 6 months to live??? To that I would say “Hogwash!” My husband Tom was told in Dec. 09 that he had 6 months at the most and that Radiation / Chemo would do no good. I did NOT listen to that and we sought 2nd, 3rd and 4th opinoins. When I helped Tom shower I told him to turn around cause I wanted to see his butt – and then said “Yep, I was right, there is no expiration date stamped on your butt”.

Our other opinoins agreed that his tumor was inoperable because it involved the hepatic artery…he’d already had a successful left lobe resection 18 months previously. Tom underwent 28 rounds of radiation, then oral chemo (Xleoda)…and his tumor is shrinking! He is still her some 20 months AFTER his ‘then’ oncologist told him he would have 6 months at the most.

The power of prayer, positive thoughts and positive outlook and GOOD oncologists can do wonders. If we had listened to that oncologist and did nothing, then yes, Tom would have passed in that 6 months. Instead we took the bull by the horns and found doc’s that were aware of CC and who were willing to take a chance. He currently has an external drain to drain off the bile that was collecting in his body (tumor is blocking the bile duct) but his interventional radiologist thinks he may be able to get a stent internalized within the next 2 months as he is seeing a small opening in the bile duct (the tumor is shrinking).

Tom currently in not on any chemo…he did also do about 4 rounds of IV chemo (Gemzar and Cisplation) when a radiologist miss read a scan and told his onc that the cancer had spread to his groin…on the next scan the ‘mass’ was gone…so his onc discontinued the IV chemo. He goes for a scan this coming Friday and we are hoping that if there are any changes it’s that the tumor is even smaller than it was on the last scan. His ocologist feels that the radiation killed the tumor.

So when a doc tries to put a limit on how long one can live with CC, I say RUN to get another opinoin! Granted we do have people who have passed rather quickly from this cancer, but we also have many who have outlived their oncologists predictions! My husband Tom being a prime example!

Go with God and KEEP KICKIN’ THAT cancer.

Hugs,
Margaret

Dear Scott, welcome to our wonderful family and CONGRATULATIONS on your treatment success….just keep it comming! At this point I cannot help with your specific questions but wanted to welcome you and let you know you are definitely in the right place. Have you talked to your ONC about the Mystery Fever as there are things he can give you for nausea and etc. Please keep us posted and keep up the excellent progress.