my dad’s cholangiocarcinoma..
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Dear Chiahuey since my husband did not have embolism I am not sure enough about it to advise you. I also want to chime in to your post to Duke in that there are no special diets to help CC except to stay away from fats and sugars which seem to feed cancer of any kind. I know that there will be more members chiming in on this for you. Again, best of luck.
DukeNukem wrote:I’m a 63 year old male who was diagnosed in July, 2013. Tumors were found in my liver (19 cm), both lungs, and some lymph nodes. Since then I’ve had eight rounds of carboplatin/gemzar. The tumor in my liver has shrunk to 11.6 cm and the others have also shrunk. The only down sides have been fatigue, lower platelets, and some further degradation of hearing.My onc has taken me off carbo for a little while to help my kidneys.
Surgery and radiation are not in the mix for me, so I am going with chemo as long as there is improvement.
DukeNukem. do you have a primary or secondary CC? and did you try any alternative cancer treatment besides chemo, like a diet? thanks..
Lainy wrote:Dear Andrea, welcome to our extraordinary family but sorry to hear about your Father. It is a good thing that the chemo zapped the lung tumor. My husband never had chemo but I feel you may want to ask the ONC about switching chemo or perhaps you need to give it a little longer. But, please don’t stop without talking to the Doctor. It is early morning here, but I am sure you will be getting some other advice on your post, hang in there as this CC requires a ton of patience. Wishing your Father the best and please keep us updated as we truly care.Lainy.. Do you think embolism would be a good option to go for?
DukeNukem.. sorry for the late reply, I’m just started uni and there’s many things to go through. Thank you for sharing your experience, that is very helpful and we’ll ask the doctor about using carboplatin/gemzar as treatment. I hope you go well with the treatment you’re having right now and soon be cacncer free.
I’m a 63 year old male who was diagnosed in July, 2013. Tumors were found in my liver (19 cm), both lungs, and some lymph nodes. Since then I’ve had eight rounds of carboplatin/gemzar. The tumor in my liver has shrunk to 11.6 cm and the others have also shrunk. The only down sides have been fatigue, lower platelets, and some further degradation of hearing.
My onc has taken me off carbo for a little while to help my kidneys.
Surgery and radiation are not in the mix for me, so I am going with chemo as long as there is improvement.
Lainy.. thank you for the suggestion, we’ve talked with the doctor and he suggested that maybe we should get rid of the largest tumor in my dad’s liver first – using radiation with Yttrium-90 and we’re thinking it might give it a try.
Kvolland, my dad is going okay with chemo as he had not experienced too much side effects except fatigue. Could I please ask if your husband had similar CC as my dad? Thanks for your consideration and I hope your husband will be cancer free soon.
Marions, thanks
Andrea….Welcome. I agree with Lainy and Kris and definitely would discuss your thoughts with the treating physician.
Hugs,
MarionAndrea –
Welcome to the best little family. You probably don’t want to be here but we are a great support and excellent resource. I would guess that prior to the chemo is liver might not have been working real well and allowed the fluid to back up in his body (gravity pulls it to the legs) and now maybe things have shrunk some to allow the liver to work better. There may be another explanation but that’s the one that comes off the top of my head.
How did he tolerate chemo up until now? I would think that would be a big indicator on if he wants to continue to do it. My husband just turned 50 and we have been dealing with it since May of 2013. He has had surgery, chemo of Gemcitabine and Oxaliplantin. Now we are now doing 25 doses of radiation and a continuous infusion of 5FU along with Interferon injections.
CC is often referred to as a wild ride as you probably have already found out.KrisV
Dear Andrea, welcome to our extraordinary family but sorry to hear about your Father. It is a good thing that the chemo zapped the lung tumor. My husband never had chemo but I feel you may want to ask the ONC about switching chemo or perhaps you need to give it a little longer. But, please don’t stop without talking to the Doctor. It is early morning here, but I am sure you will be getting some other advice on your post, hang in there as this CC requires a ton of patience. Wishing your Father the best and please keep us updated as we truly care.
Hi, I’m new to this site as my father, 50, was recently diagnosed with cholangiocarcinoma, it has spread to his liver with a 17.1cm tumour and several small tumours in his lung. Also I’ve noticed that before the chemo his legs were swollen but it is fine now, is this a good sign? He did 4 chemotherapy up till now and only a 2 cm tumour in the lung have disappeared, so we’re deciding whether or not to continue..? any suggestions are appreciated
Andrea
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