My Grandmother was diagnosed the 13th

Hi Tonia…….. I can only echo what everyone else has already mentioned. Advocation, second opinion without a doubt, love and support. But as we all know, that’s up to your Grandmother and how far advanced things are and what she would like to do, as the choice of quality versus quanity comes in to play for many of us.. As far as time, doctors can only suggest. A lot depends on on the patient themselves and how they approach their treatment. There are many of us that have been told to get our affairs in order, but are still talking up a storm years later. There are many different treatments available and procedures that have proven to extend life very much so. Each person is different. As hard as it is, approaching this diagnosis with hope and a open and positive mind plays an important role. Tonia, if there is something your wondering about and can’t find the answer, don’t hesitate to jump in and ask. There is a whole array of first hand knowledge on this site and people willing to share their experiences with you. I wish your Grandma only the best of the best, while she wrangles with this disease.

God Bless You and Your Grandmother,
Jeff

T…T….I also would like to welcome you to our special little world of Cholangiocarcinoma. You are already helping your grandma by being involved in her treatment and by reaching out for information and simply, by being with her. Once you will receive the pertinent information from the physician your grandma and you will have some decisions to make and I believe, these decisions should be based on as much information as possible. Of course, I advocate for 2nd or 3rd or even more opinions as this cancer effects people differently. Gathering all records including surgery report and physicians notes plus any medical imaging and lab results and forwarding these to another center or physician familiar with CC would be one way of assuring yourself that nothing is being overlooked in re: to your grandma future plans. And, don

T,
I am sorry this has happened to your grandmother. The only thing I can suggest is that you advocate for your grandmother. Are they going to offer any treatment?

As to doing more,..you can only do your best. I often read carers beating themselves up for not doing enough. If you are doing your best you are doing enough. Watch her pain and make sure she is getting the best pain relief available to her. Managing pain and being there and listening and talking will help your grandmother.

I am very sorry this has happened.

Kris